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Picture Perfect

It’s the beginning of the day, bright and sunny just the way you picture a perfect afternoon. Expect, for me, it’s a picture perfect nightmare. The sun is glaring in, making me squint even harder. The blinds are no match for the sun today. As I wake up, the pain is so overwhelming. It’s almost crippling as I make it to the kitchen, I need to get meds in me ASAP.

As I sit down in the recliner with my hand holding my head, praying for it to stop, the throbbing is unbearable. I lay back for a few minutes hoping the medicine kicks in sooner rather than later. It’s another day at home, under the covers to block out as much sun as possible. As I stumble back to bed to snuggle in with my best bud, I can’t help but think what a nice day like this could have been if I were pain free. It’s exhausting day after day pain on top of pain. This type of tired is no match for the frail, this type of pain makes you a warrior for as long as it can. Then the breakdown, the warrior inside is losing its grip. I feel like I can no longer face it, I feel as if nothing is going to change. There is no cure for this kind of tired. There are no happy days anymore, it’s all picture perfect nightmares and tomorrow it starts all over again.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • shelleysqrd
    2 years ago

    I understand way you are going through and the feeling of hopelessness, frustration, depression and excruciating fatigue grok the chronic pain. I won’t say it will get better. That’s condescending. I will say try to keep your warrior strong and use whatever support system you have to help you do that. Fighting that same battle myself. Take care

  • DonnaFA moderator
    2 years ago

    Hi shelleysqrd,

    Thanks so much for being part of the community and sharing your very real, very raw and empathetic words of support. We’re very glad you’re here, and we’re always here to lend you support as well. I wish your warrior strength, too. -Warmly, Donna ( team)

  • Falcon6
    2 years ago

    Your days sound like almost every one of my days. I was at the point where I just didn’t think I could take much more. Years of pain had just worn me down. After a 4 month wait, the day of my appointment with a headache specialist finally came. I had a terrible headache by the time I got there. After much talk, reviewing my headache log and paperwork and an examination, she dianosed me with Occipital Neuralgia and Migraine – or maybe it is just the ON causing migraine-like symptoms. She put me on a muscle relaxer, gave me a rescue pain medication and a few weeks later, I had Botox injections. I have had some slight head pain, but it goes away quickly. The muscle relaxers made a huge difference, although now I feel very sleepy all of the time – but I will take that over the pain! I encourage you to find a great headache specialist, if you haven’t already & I truly hope you find relief soon. I know what you are feeling now and I don’t wish that on anyone.

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