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Continuation to Six Years and non-stop Migraine headache

These past few weeks, before Holy Week and After, the headaches have gotten worse and more severe. To go along with my first story.

Now, there is a great pressure and pain every so often, as if there is swelling, a few nights I could not sleep and stayed up till I just couldn’t stay awake, no pain meds worked, not even ice blocks on the head, wearing my sun glasses and so forth. It starts from the lower back of the head to the tip of the front of the skull. This pressure happens more often now and becoming regular. My doctor doesn’t want to hear about it and says there is nothing he can do for them, that is no option or answer. Please read my first story about this and then this with new information.

With the pressure and horrible pain it causes, makes it hard to see, to hear; with what light and sound I can handle, when it builds, paying attention is hard and can’t focus on what is being said or what I read or what I’m watching. Plus the most serious part is when the heart races faster to counter what is going on, makes it hard to breath, when the heart does this, it takes a long while; many hours, to slow back down and the pressure to calm. Now with the headaches itself, it is becoming constant.

Please let me know and my parents know what we can do and what is going on, since our doctors aren’t doing anything about it.


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  • Katie M. Golden moderator
    5 years ago

    I re-read your first post and our conversation from that. It sounds like your general practioner is not the answer at all. And usually they aren’t because they don’t have special training in this area. You mentioned that you had seen a neurologist in the past. Is this someone that you see regularly? If not, can you make an appt? This is your best starting point. And like I had mentioned before a Headache Specialist is going to be the BEST option for you. There aren’t very many and you may have to travel, but it could greatly improve your well-being.

    A Headache Specialist may also be able to refer you to a Headache Center such as the Jefferson Headache Center in Philly, the Diamond Center in Chicago or the Michigan Head & Neurological Institue. You can read about my experience at Jefferson here:

    Of course all of this depends on insurance, approvals and costs, but I wanted to let you know these facilities exist. And their staff should be knowledgable about hormonal changes and their effects on Migraines.

    On another note what medications have you tried? Maybe there are some you’re not aware of that I could suggest (but I’m not a doctor!). In the end it’s going to be about finding a doctor that is going to listen to you and you absolutely
    deserve that!


  • Andrew author
    5 years ago

    Our usual family doctor that won’t listen, he did set us up with an appointment to a Neurological doctor in Hays Kansas, she was worse than he is at not listening. She was rude, never did any serious testing, only did a very basic eye test by looking at the pupils with the light, we went there to check my spinal fluid and she said it was un-necessary. She gave us a prescription for another pain medicine that would kick in and begin to work in a month, not right away, plus had us schedule an appointment to return before the medicine would take affect. The people who worked there wasn’t dressed very professionally; meaning she didn’t even look like a doctor, instead, she was dressed to go on a date. So my mom and I canceled and haven’t found a good doctor still.

    We were prescribed the 8-hour Tylenol, Benadryl, 2 allergy tablets, Tylenol codeine three, and Ibuprofen by the doctors of our local doctor office and hospital that work in the ER.

    My mom started to look up headache specialists from your response in our area or near us, everything with this illness is advancing so fast. Thank you so much for helping us.

  • Katie M. Golden moderator
    5 years ago

    Always good to follow your gut with doctors. If you didn’t trust the neuro and felt she was unprofessional, no need to go back! I’m not sure how your insurance works, but I hope you can get to see a Headache Specialist or at the least try another neurologist.

    Since the Migraines are so frequent for you, you should be on a preventative medication like Inderal, amitriptyline, or topamax- there are so many to try that a neuro can help you with. The prescriptions you were given help treat the pain, but are really not treating the Migraines themselves. Have you ever been presccribed an abortive medication like Imitrex or Maxalt? These you take when the Migraine is the worst. They work very well for a lot of patients. Again, a neuro can help you work through which ones will help you.

    Before you do see a new doctor, something that will help is for you to keep a Headache Diary. Every time you have a new Migraine you write down the symptoms you have, the pain level, how long it lasts, what you ate before it began. The Migraine Meter on our website is a very helpful tool.
    The more info you can give the doctor, the better they can help treat you. And never think that something is too small to mention. If you notice something odd (like a new twitch or numbness in your hands) it can help the doc!

    I also want you to know that this process is probably not going to go as fast as you want it to. We all wish there was a quick fix. With so many medications and combinations thereof, it can take a while for you to find the right meds and the right doctor. It’s going to be frustrating. Remeber to ask for help and to reach out to the community here for support. I’m so sorry you are going through this.

    Please ask as many questions as you need, we’re all here to help!

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