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Suspected Stroke

On January 1,2011 I was driving back from Houston, TX going home. I was still about 2 hours out when my left hand started drawing up and in a bad spasm. It continued to do this every few miles. I already knew I had a pinched nerve in my left elbow and that maybe this was caused from the pinched nerve. But, then I got the burning pain in my left arm and the back of my head. This really scared me. I finally made it home and all the symptoms went away except for the headache. I did have the spasms in my hand a couple more times that weekend but that was all.

I called my dr. Monday morning made an appointment to discuss the new symptoms. He scheduled me for an MRI and an EEG. I had the tests done and it showed nothing to indicate a stroke. He did some other tests in office and decided I was having seizures brought on by my migraines.

I didn’t realize I was having migraines, but then he told me that not all migraines were just pain in the head, but caused several other symptoms also. I am currently taking meds (but/apap/caf) and so far they are working to keep down the seizures or I call spasms in my left hand and arm. My headaches are getting better also.

Who would have thought migraines could cause seizures?

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  • Ellen Schnakenberg
    8 years ago

    Hi ppooh1157,

    A few things you’ve said sound very suspicious to me. First, seizures almost always result in unconsciousness or an altered state of consciousness. They should be easily visible on an EEG. I wonder if you have ever heard the term Focal Dystonia before?

    I am a Dystonia patient. Unfortunately, it takes an average of more than 10 doctors and 5 years for the average patient to be properly diagnosed with Dystonia. Most doctors have never seen it and are frankly clueless when they do see it. I suffered a couple of years before getting a diagnosis, and that was purely by chance. I would encourage you to look up Focal Dystonia and perhaps get yourself hooked up to one of the Dystonia communities to talk to them and see what you think. Here is one run by a nurse practitioner with Dystonia in her neck called Cervical Dystonia. A movement disorder specialist is the doctor you want to see for this. When you’ve done that, I would encourage you to see a headache specialist who has special training in diagnosing and the latest treatments for Migraine, if that is what you are suffering from. Unfortunately, Migraine and other headache disorders (especially cervicogenic headache) are very common in Dystonia patients. Butalbital will help the spasms of dystonia, but eventually can cause rebound headaches for Migraineurs and should be used sparingly in most cases.

    Think about this information and consider using it to generate a conversation with your doctor. I think a second or third opinion might be in your best interest…

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