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Day 7

  • By becwright

    I’m having a completely atypical migraine. I’ve been diagnosed with vestibular migraines for about 2 years. I get dizzy and funny vision and light sensitive. A low dose of topamax prevents 95% of the migraines and taking meclizine at first sign and wearing sunglasses takes care of the rest. I’ve never had a migraine last more than 6-8 hours or past sleep.

    Last Monday I took an oral glucose tolerance test because I’m being evaluated for diabetes (I’m not pregnant). Within minutes of starting to drink, my vision went funny and I knew I was getting a migraine. They wouldn’t let me take my meds because it would mess up the three hour test.

    I took some meclizine after 3 hours. Did nothing. Went to urgent care on day 2, got toradol, compazine, fluids, did nothing. Went to ER on day 3, got steroids, more anti-emetics, more fluid, etc, did nothing. Saw neuro I like on Thursday, got third dose of Toradol, a 4 day flare of pred (which is messing up my blood sugar fierce and making me scared of food) and zofran. On strict orders from my endo if I puke to go to ER, but have avoided that so far.

    She told me to call her back on Monday if migraine still going. It’s still going. Headache, light sensitivity, sound sensitivity, nausea, dizziness to the point of swaying when I walk, word finding problems.

    I just don’t know what to do anymore. Nothing like this has ever happened to me.

    reply
  • By Nancy Harris Bonk Moderator

    Hi becwright,

    I’m sorry to hear you are having extended migraine pain. That is very upsetting and frustrating.

    It’s not uncommon for our migraine attack patterns and triggers to change over time, I know mine have. Since you are still not feeling well, I would go ahead and contact the doctor first thing tomorrow morning and see what he can do to help break this cycle. It may take an infusion. Some medications that can be infused to break a nasty migraine cycle include;

    dexamethasone (brand name Decadron)
    dihydroergotamine (brand name DHE45)
    droperidol (brand name Inapsine)
    magnesium sulfate
    ketamine
    levetiracetam (brand name Keppra)
    lidocaine
    metochlopramide (brand name Reglan)
    promethazine (brand name Phenergan)
    propofol
    tramadol (brand name Ultram)
    valproate sodium (brand name Depacon)

    I hope this helps and they are able to stop it ASAP. Will you keep me posted?

    Nancy

    reply
  • By Nancy Harris Bonk Moderator

    Hi becwright,

    Any word from the doctor??

    Keep me posted and I hope this breaks soon.

    Nancy

    reply
    • By becwright

      Hi Nancy, sorry for the lack of update.

      I ended up hospitalized for four days. Finally broke the migraine on day 11.

      What finally did it was this benzo/tylenol/caffeine combo med. Plus a lot of zofran, cause boy did the first med make me nauseous.

      What kills me is that I was offered this med on day 3 in the ER, and when I asked for a gluten free version (I have Celiac and gluten exposure has put me in the ICU) they just said too much trouble and gave up on giving it to me. That’s a whole extra week of migraine I could have been saved.

      At this point it’s post-migraine recovery. Felt ok for a day but then the massive steroid withdrawal kicked in. Also the physical side effects of being curled in the fetal position for two weeks.

      Meeting with my neurologist to discuss all this on Monday, but I’m really crossing my fingers I never get such an extended migraine again and that this was a one time event with a specific trigger.

      reply
    • By glassmind

      Have your doc write up and sign a specific treatment plsn for the er to foloow. Saves much hassle. Sorry you had to go through thst. Msy it be the last timr. But a Migraine Action Plan is very handy.

      Hugs

      reply
    • By becwright

      Oh, that’s a very good idea! Thanks.

      reply