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Living with Migraine

New to this; a bit in the wilderness.

  • By Mrcharly

    I’m a guy, fairly fit and active, in his late 40s. Recently, after riding on a fairground ride I developed chronic vertigo and mild headaches. When it didn’t go away after two months I went to the doc. They suspected Menieres (there is family history of this) or a non-malignant tumour in the vestibular region.

    I had an MRI and complex balance tests, which ruled out both. This took a couple of months and by this time I was getting headaches at least every 2nd day. Sometimes they’d come in episodes of dizzyness making my eyes flicker giving me complete head fog. On a bad day the episodes would hit almost constantly for up to an hour or two. I couldn’t drive.

    The hospital decided to go with a tentative diagnosis of ‘vestibular migraine’, which I’d never heard of. Again, a couple of months had elapsed to get to this point. We are now 6 months in from my first visit to the doctor. Headaches every day, for pretty much the entire day. Soluble Aspirin + paracetemol just taking the edge off, but I’m still dizzy and brain is fogged.

    Hospital and doc are trying treatment with amitriptilyne and then maybe beta blockers.

    I started on 10mg of amitriptilyne 4 days ago, no effect so upped it to 20mg last night. Today I have the stiff neck, dizzy and my brain is foggy but not really aching. Ironically I could ignore the headache as long as I could think clearly! My job requires me to be able to think clearly.

  • By Pomegranate

    I also have dizziness/vertigo components to my migraine, and strong motion sickness. So far only topamax had helped those symptoms but they took me off due to kidney stones forming from the medication.

  • By SJD

    I would also go for second and third opinions as well. You may find other doctors who will find the answer. It sounds awful. I feel for you.