When was the last time you changed or tried a new migraine treatment?
Sometimes it can feel like the path of migraine treatment is so windy and confusing. One minute, you're on a treatment regimen, and the next, you have to add something new to your arsenal because of a new symptom showing up or a medication not working anymore! When was the last time you switched treatments or added something new to your treatment plan?
2 years ago. Ubrelvy & Nurtec. Ubrelvy might help a little. Had a dreadful migraine with Nurtec. Both are prohibitively pricy on Medicare. I’ll stick with Sumatriptan.
I am sorry to hear about your experience with Nurtec. This is one that I have not been offered, or, felt I needed. I use Sumatriptan also. What strength and route of administration do you use? I use the intranasal form and use 20 mg. I hope that Sumatriptan is working well for you. (Tonya, migraine.com contributor). Nurtec did nothing for me. Sumatriptan is my life saver as an abortive. BOTOX and AIMOVIG have taken me from 20+/ mo. migraines down to 4-7. So thankful I finally found something that worked. I still have daily headaches, but not migraine level.
I am in my early 70'sand have had migraine issues since childhood. It wasn't until early adulthood that I became a patient of a really good Neurologist. I am still with a very good Neurologist - and we plan together. I now live approx 6 driving hours from her BUT I only see her in office in the good weather months and we skype etc in bad weather months. Over the last 2-3 years we have been trying a lot of the new stuff to try and find both preferable preventative and attack management care. Due to my current age, I feel more urgency to find things that result in as few monthly migraines as possible (I am diagnosed as Chronic Migraine - more than 15 migraines per month.) So far we have given really full trials to Aimovig - great results but my hair loss became an issue. Botox - almost a full year wasted with zero positive results. Currently Qulipta - we are up to the larger dosage BUT I need to eliminate Topiramate from my regime and that takes time. SOOO there is some frustration - just all related to the time it takes. Ubrelvey and Cambia are my attack meds - they do help alot - love them. I am seeking the best migraine health asap as my life line is kinda short. ALL are costly. I max my annual drug benefits usually by April. my Neuro. has found some compassionate help. My husband and I are fortunate that we can just "bite" some of this - but that is mainly due to considering our age and savings.
My hair fell out alot with Aimovig but I had chronic, bad migraines and I rather have hair loss than the years of pain that I endured. Now I have neuropathy in my feet most likely from the CGRP blockers. Migraines are tough, expensive and hell to go through. We all have to endure this burden. I will tell you, after about 5 years my hair loss decreased emmensely. It is thin butI am grateful for the relieve. The Costs are nasty I can attest to that, when I called Medicare they suggested I call the Manufacturer and see if they would help, So in my case I had just started Aimovig. The MANUFACTURER is Amgen Safety Net Foundation, If your income is Social Security like me it's all free, they mail you 3 injectibles for each 90 day period in a Styrofoam container and you keep them in the refrigerator until 1/2 hour before use. I'm sure you could love this price, as it was $581/Monthly if I had to get it at the local pharmacy. It's been a lifesaver, needless to say I've suffered with migraines for 45 years.....
December 12, 2022, Botox for 8 months. Minimal effect
I use botox but it only gives me two weeks of help I'm so very sorry. I've seen that it either really helps, or doesn't.
It worked well for me, for awhile. Then stopped and I also developed skin/scalp irritation.
This week
good evening. I hope that today is a good day for you. I see that you just recently started a new medication. What change was made? Are you new to migraine? I hope that this will help you. Be sure to come back here to let us know as treatment progresses, or, you can share in a status update: https://migraine.com/community. You can post an update under " How are you feeling," on that page, or, mid way down the page, there will be "Share your story" and "Start a discussion." I hope to hear good news about this later!! (Tonya, migraine.com contributor).
