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  • By Cat

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    @2iv2m9
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    Cat posted an update 4 days ago

    Help me.. My health is terrible, I am a burden to my mom who I live with cause I cant do simple things, my sister is getting annoyed when I call her to talk, my friends aren’t here for me, I have no money, I have nothing and It’s not just migraines that take me down. I have a congenital heart defect called atrial septal defect, atrial-fib, svt, atrial flutter, a pacemaker, vertigo, blackout spells, liver cirrhosis(from meds I’ve been on for my heart), ascites. I cant take half of the migraine meds due to these conditions and the other half I’m allergic to. I’ve seen 3 neurologists who have all given up on me,1 neurosurgeon who monitors my cyst in my brain yearly which is too small to do anything and im still waiting on the pain clinic. And now I have one dr who has scared the crap out of me saying I should be on the transplant list for my heart and liver making it sound like I dont have many years left and I’m only 40. I know he’s not a specialist but why would he even say that when my cardiologists just put a new valve and pacemaker in and didnt say anything themselves?. I’m really scared and lost. i just want someone to understand me and what im really going through.

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  • By Cat

    sorry for the begining part before the request for help, dont know what happened

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  • By Allyson.Ellis Moderator

    Hi Cat, I’m so glad you took the time to reach out. I hear how much you are struggling with migraine and your heart issues. It is so difficult when managing more than one chronic health issue and medications for one are contraindicated for the other. It is scary when a doctor suddenly suggests you should consider being on the transplant list, seemingly out of the blue. I would encourage you to follow up with your cardiologists and ask for her/his recommendation. Your cardiologists are certainly going to know and understand your heart and its prognosis best. Please know in this community you are among those who understand the challenges of living with chronic illness. We are always here to listen when it feels overwhelming and you need a safe space to vent. Wishing you a gentle day. ~Allyson (Migraine.com team)

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