I’ve had migraines since I was born (my parents say that I would have crying jags for days that absolutely nothing helped). For the last 10 years they’ve been nearly every day. This year alone I’ve been to the ER 33 times (they told me that last time I was in when they explained they will no longer help me treat my migraines in the ER-freaking awesome right?). My former neurologist diagnosed it as Status Migranosis – migraines that lasts for 3 days or more at a time. I end up taking imitrex and relpax nearly every day because otherwise the pain gets so bad I become dangerously self destructive.
My migraines are also ALWAYS accompanied by severe nausea and I have spent so much time throwing up that my teeth are severely damaged. I’ve had several doctors say that isn’t normal for migraines and even had an upper gi scope to check for something wrong.
I was reading the article about the Unofficial migraine type Godzilla and that completely describes how I function when I’m having an episode. “your physical coordination is off during a migraine attack (even during the prodrome and postdrome phases), and many of us have bonded over the frustrating symptom of not being able to find the right words when we are speaking or writing” certain members of my extended family have decided I’m secretly a drug addict because of this fumbling confused behavior and that I’m faking the headaches.
I don’t have aura with my headaches but I do have visual disturbances. One of My eyes goes totally blurry or black in about 20% of my headaches making driving out of the question. I just lost yet another job because I’m so unreliable.
My depression has consumed my life and I’m just wondering if others who have had this diagnosis have eventually found relief or if this Hell on Earth is what I have to look forward to for the rest of my life.
Also I keep seeing people who have applied for disability and been approved based on their migraines but every time I apply they tell me that migraines aren’t debilitating and that I won’t get approved. Can someone walk me through getting approved? I live in Washington state if that makes a difference.