I feel like we are at a crossroads and I’m not sure where to head next in trying to find a solution to my teenage daughter’s migraine. First, I want to point out that she does she a certified pediatric migraine specialist – the only one in our state. And, that we believe they are hormonal.
She had her first ever migraine on 8/29 of last year it responded only briefly to any abortive meds she tried, OTC, triptans, DHE IV infusion in the hospital — all those worked for a short period of time or not at all.
They finally put her on Elavil and Topamax and on 10/21 — yes — nearly two months later!! — her migraine ended.
Unfortunately — it was back just under a month later and again would not respond to triptans on migranal. Switched the preventative to Depakote, which worked for a month.
Now she has had a migraine since 1/6 – it waxes and wanes in intensity from a 3 to a 7/8 (which required an ER visit that took it took a 1 but only for 24 hours)
We’ve switched the preventative to Inderal and are waiting for that to kick in.
In the meantime, I feel like I really need to think ahead about what to do next. The fact that she is only 13 limits what we can do — no botox and no TMS — among other things.
Is it time for a nationally recognized specialist or do I need to give my local, certified pediatric neurologist more time?
It is so unbelievably difficult to watch your teenage daughter suffer day after day. She’s not in regular school anymore. She’s a competitive dancer and is continuing to miss that, as well.