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Living with Migraine

Who can you trust?

  • By Newdancerco

    For the last 5+ years of my migraine journey, I had a friend by my side who had been a Neuro PA, and was comfortable talking about ideas drugs, symptoms, etc, between doctors visits . We discussed her tumultupus love life, mine, and our respective medical histories and what other options we could try next.
    When I came out of my first surgery, she was visiting within a hour.

    Tonight, though, I learned what she really thought. She wanted to talk, and I was more than willing, I just couldn’t take the sun or sound of a bistro, so I explained why I’d prefer texts. She proceeded to tell me in quite clearly that I choose to be in pain, I choose to allow life to pass me by, bbq i should just get up and do it and I will be fine (i won’t, I’ll wrap around a tree). That I was selfish for answering her questions about my life if I wasn’t going hear about hers in third (which I was, just didn’t know it requires a move into the sun, driving, etc).

    I wonder how long she has been feeling like this? Is it really selfish to answer questions when you cannot be endlessly happy?
    I knew there was a reason I don’t tell people about my feelings- no one really wants to know. No one cares. Why even try?

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  • By Kristy

    I’m very sorry you have migraines and then have someone you thought was understanding how you actually felt. I do t think anyone can truly understand unless they have lived with migraines. I have a boyfriend, most days he is my husband, today boyfriend because we were never married but have been together almost 30 years.every so often, more often then not we argue about how I only clean house part time. Not enough to keep up, laundry, dishes pile up. Day to day chors. I’m lucky to feed the dogs and take them out most days. Today, his level of understanding was zero. I woke with a Migraine. So he yells…not good for my head. We are not married like I said so I reminded him, as if I should dropped off at a nursing home. I realize more than anyone I can’t do what I want to. Consequences for errands and a good day, thunder storms all night, and today I am paying for it. So why tell me this on one day off for three has to stop, we can’t live like this. Makes me feel so guilty and worthless. I didn’t mean to rant but t get why people commit suicide. Don’t underestimate the condition of another person’s chronic pain or capabilities. They don’t want to be in their situation either. No one wants to live in a cave isolated. I apologize if misspelled words or phrases, like I said migraining right now, with a very bad frame of mind. Good luck and best wishes to my fellow Migraineurs.

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  • By ddowlen

    I began looking into natural stuff that didn’t make my hair fall out and make me feel crappy from all of the side effects.I found a product that worked for me after 30 years of suffering every single day with a migraine. I consider myself at the extreme end of sufferers. Might be worth a try for some of you and the best part was its all natural (no side effects) and they offered a trail bottle. I read all of these posts on this site and it breaks my heart to know most of you are still miserable. Look them up. It might be your answer. Doctors and meds did NOTHING for me for years!!! The name is URLifeBack and I stand by it. It gave me back my life and I’m grateful. Best of luck to all of you

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