CommunityMember5837406
Why oh why in the United Kingdom do the majority of us have to take a break of up to 3 months after each year of a CGRP prescription? I keep being told it is in accordance to the rules and regulations of N.I.C.E.. but not for every locality. A Post Code Lottery comes to mind. Not Right.đĄđĄ
Holly Harding Moderator & Contributor
I have heard that the UK is more conservative with CGRPs in general in that it's likely a drug will be removed from a patient's treatment strategy if it is not significantly decreasing attack frequency. In other words, even if it is helping decrease the severity of attacks, CGRPs will be discontinued because severity is not as easy to quantify/measure as attack frequency.
How very frustrating, indeed! Have you discussed this with your doctor? Warmly - Holly (team member)
CommunityMember5837406 Member
Holly Harding Moderator & Contributor
CommunityMember5837406 Member
Holly Harding Moderator & Contributor
Melissa Arnold Community Admin
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Holly Harding Moderator & Contributor