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32 days into postdrome and no relief in sight

I'm 62 years old and on an Rx plan that has limited my debilitating pain from headaches, along with the frequency, but normally suffer the classic brain fog/ complete fatigue phase for at least a week post headache. This time I am living a nightmare as today is day 32 of wandering around in a complete fog. The only thing that alleviates the feeling is either plopping down on the sofa or going to bed.

I have a neurologist at the University of Virginia. His diagnosis is "You'll get better eventually" and has referred me back to my PCP.

My PCP gave me a steroid shot ((Methylprednisone 80 mg) and said IF it was going to help it would kick in within 48 hours. It did nothing. He went on to say that he has no idea what to tell me at this point.

I have had bloodwork 3 times in the past month, peed in a cup, and had an EKG. UVA ran an MRI two years ago. All tests have come back totally normal. neurologist has no clue what to tell me, and neither does my PCP.

This living hell has put my entire world on hold as all I do is lay around as the world passes me by. Normally I am an avid cyclist and work out 6-7 days a week when I am not doing my normal job, which is that of a high school teacher. I started back in the classroom last week, in this condition, and it has been brutal.

Does anyone out there have ANY suggestions? I'm at my wits end, and the medical community has basically given up on me. BTW - I've tried both acupuncture as well as a chiropractor.

Many thanks!

  1. @coachbl wow, you've been going through quite a tough time! I would suggest finding a headache specialist or another doctor that is more familiar with migraine disease. It can be a hard process and you may have to make a drive to get the care that you need, but in the end, it will be worth it. My husband had to find a new doctor after he had all the ones he was seeing stumped with his chronic, intractable migraine attacks. We now drive a good hour, but he's got a good doctor in Tampa. I hope you will find some relief soon! Warmly, Cheryl migraine team member

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