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5 years of a constant headache

I have had a constant 24/7 headache for over 5 years. The first year the pain was horrible and then my Neurologist started me on botox and along with topomax and varapamil the pain level has been reduced to a level I can live with most days. The doctor thinks I have a rare form of migraine. I have been to a headache specialist with no luck and had an MRI, spinal tap, etc. My question is ....Has anyone else had anything like this? I have forgotten what it feels like to not have my head hurt.

  1. Hi Lenna,

    Thank you for your post. I am so sorry to hear about the pain you have experienced, however it does sound like you have found a treatment which has provided you with some relief, which is great to hear. While I do hope community members will provide you with some of their insight and personal experiences, I thought I would send along a few articles. The first one discusses various types of chronic migraine - https://migraine.com/migraine-types/. The following provide self care tips for managing symptoms while in the midst of an attack - https://migraine.com/blog/a-list-call-for-creature-comforts/, https://migraine.com/blog/community-responses-what-are-your-go-to-techniques-that-bring-you-comfort/. Also, perhaps you will find these articles informative as well - https://migraine.com/migraine-and-mental-health/eight-emotional-stage-of-living-with-migraine/, https://migraine.com/blog/coping-skills-save-the-judgement-what-matters-is-finding-what-works-for-you/, https://migraine.com/blog/migraine-and-mindfulness-bruce-almighty/. They provide ways to cope with the emotional impact of chronic migraine. Again, thank you for your post and reaching out to us. Please continue to reach out when needed and keep us posted on your progress. We love hearing from you.

    Warmly,

    Meaghan (Migraine.com Team)

    1. Hi Lenna,
      I just read your post and yes I know what you are going through. I have also had a constant migraine for 5 1/2 years. I have tried many things which I am sure you have as well, been to many drs, medications, diets, etc etc.

      I know it has been a few years since your post. Do you still have your migraine or have you found any relief? Also I used to get “regular” migraines that went away, sometimes stubborn ones that lasted a week or two. Then one morning I woke up with this migraine and it has never gone away!

      Thanks for sharing your story and I hope you got relief!
      julie

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