I don't know if it's just me, but more and more, I'm being accused of faking my condition or exaggerating my symptoms. I wouldn't wish what I go through on anyone, but to those who make such hurtful comments, sometimes I can't help but think, 'if only you knew, then you wouldn't be so quick to judge'!
I find that just because people don't understand or can't quite put my complete inability to do anything and the word 'migraine' together, that they then get annoyed. It's the impatience above all that I can't stand.
Following yet another stay in A+E, the nurses accused me of wasting their time, taking resources away from other patients and being inconsiderate of others. Well, I am sorry, but I didn't ask to waste 6 hours of my life in complete and utter pain in an A+E dept, when I have better things to do, not to mention that the choice to be there wasn't mine in the first place, but the paramedics'.
It's almost as though I am not in serious danger and so it doesn't matter; but, I am in danger in a way, if I am unable to get myself home safely or even walk in a straight line! I get that I might not be their most important case, but come'on!! A little respect please! It's even more infuriating when a young girl comes in who is absolutely paralytic from drinking alcohol - and whilst I don't wish her harm (admit it, we've all been there to some extent) - I have to wonder at why she gets a better standard of care and no impatience from the nurses when it is self-inflicted and I get treated worse than the dirt on their shoes!?
And to add insult to injury, the A+E dept that claimed I was faking in the first place, have now decided that I am no longer eligible to look after my son, that I am an unfit mother and that he is in harms way - let me add, that he isn't and if I ever thought that I couldn't watch my son, my husband would take charge - and so, they have or are getting social services involved!!
I came home from the A+E dept battling the beginning of the 'hangover' phase of the migraine, whilst also feeling absolutely completely worthless and with a view to thinking twice in the future about attending A+E. Not that it would ever be my first choice, if I know that I can make it home, but ANYTHING would be better than going through that again!!
And as an afterthought, considering the complete lack in my self-worth right now, I was thinking that if I ended up getting so upset and depressed and finding it hard to go on and did something about it and ended up in the same A+E dept, albeit with self-inflicted injuries, I would get better care!!
So, my question: anyone else experienced anything similar?