Bi-Lateral Greater Occipital Nerve Route Block
Has anyone had seizure activity/side effects after receiving these injections?
Hello - thanks for the question; it's a good one. I've recvd a few occipital nerve blocks. I may not have had the full effectiveness they are supposed to provide, but I have not had adverse effects from them. Have you been experiencing side effects? It can be quite unnerving when side effects occur during a procedure or treatment that should or could help relieve symptoms of migraine or neck pain. I hope others sign on and join in the conversation. It would be interesting to hear about others' experiences with these blocks. Hoping you find answers. Sending healing and better health your way. Rebecca (team member) Hi Rebecca, I was fine with the left hand side injection but at onset of the right hand side I got a tightening/tingling up my head and blacked out within a few seconds. I have a few flashes of memory of being in and out of consciousness, body vibrating, arms and legs twitching badly, head rocking left and i was unable to speak or move, I thought this lasted a few minutes but i lost over two hours. ( clinician letter stated seizure type activity for over 60minutes). I was sent home, Seizures continued and are still present. Cognitive decline and emotional liability are debilitating. No short term memory/memory recall, difficulty understanding/processing others speech.. many other issues. My life is a car crash since that injection and my brain still thinks 12/02 was yesterday. I am desperately trying to understand what has happened to my brain so I can fix it and get my life back. I am hoping someone on here might have some ideas/similar experience? I have finally managed to get an EEG Appointment for 21st June. No-one in NHS will listen to me.
My goodness that is very troubling. I have had nerve blocks for migraine - but I'm not certain I had these specific kinds you speak of here - I've had no such side effects. Very upsetting that you are not getting a proper response from your doctors. How long ago did you get the nerve blocks and had you ever had them previously? Were you having the blocks to treat migraine? Have you had seizures before? When you say your brain thinks 12/02 was yesterday- how is that date relevant? Good to hear you have an EEG appointment coming up in a couple of weeks. What type of doctor is overseeing that appointment? We are here for you. I'm hoping others from our community will chime in with helpful information for you. In the meantime, I'm going to tag one of our other team members, Amanda Workman, as she's had a similar procedure in case she may be able to give you information and/or support on this topic- she's written about it here: https://migraine.com/living-migraine/nerve-block-injections-back-pain - Warmly, Holly - team member
Hi, I had the GON Block on 12/02/24, I had had one last year with no issues and the first one this time i had no issues. Never had a seizure in my life until the RHS Block was started.
I cannot think straight anymore, everything is confusing and although I get moments of clarity in a day they don’t last.
I really need answers to try and process this and get better.
I am so sorry about this experience. I mentioned on another thread that I have had one but it did nothing for me and caused no side effects. I see from the Cleveland Clinic that some risks are: bleeding, syncope, temporary swallowing difficulty, nerve/arterial injury, etc. Here is the link: https://my.clevelandclinic.org/health/treatments/24934-occipital-nerve-block#risks-benefits. Here is some additional information from the National Institute of Health also: https://www.ncbi.nlm.nih.gov/books/NBK580523/. I hope your appointment proves beneficial. Hang in there. (Tonya, team member). Yes, thank you for going into more detail. I am sorry this happened/is happening to you and you are still dealing with repercussions from GON injection. It sounds simply frustrating and frightening that you've not gone back to your "normal" state of functioning. Has the treating physician given you any direction or further plans? I would think they'd want to be in touch quite often to see how you are progressing after having a seizure. As I mentioned earlier - I certainly hope others who have gone through this log on and offer up their experience. Wishing you better days ahead. Rebecca (team member)
The seizures are ongoing since the injection, down to one every 2/3 days now instead of numerous in a day, this lifts some stress. I finally got someone to listen last month and have an appointment for an EEG later this month, followed by an appointment with the migraine consultant. Hopefully I will get some helpful information at that point. Many thanks for your well wishes, i wish you pain free days 🙃
