Been diagnosed with clusters now for 7 years and brother are they painful. I have tried every imaginable medication and treatment but oxygen and the new Qulipta, has really cut down on the number of epidsodes. I still take a number of medications when a bad number of episodes occur but I do not let them rule me I take charge and carry on. I forge through them and do the best I can to make it through. I am now retired and have the luxury to rest in my DARK ROOM I have created when they occur and rest. All you can do and make the best of it. There are days whenI do have migraines only but they are mild in comparison to clusters. They happen on one side of the head and particular over the eye and no wonder they call them "suicide headaches"...you wish you were dead they get that painful and you sit and cry out in pain but crying makes it worse, so you just succumb to the pain and soon it will diminish and you can catch your breath and
unclench your fists and unravel yourself from the fetal position and breathe again in a normal fashion and hoping another one does not come again. The bad ones do not come that frequently, perhaps 1or 2 times a month but small to medium episodes 2-3 times a day and then silence for a day or two and then BAM, they are back.
In toto, I am so used to the pattern now, that I have just learned to adjust and live with it. Barometric pressure, smells, and weather are triggers for me. I am fine and deal with it. Just part of my daily life.
My medications are: Toprimate, Tramadol, Emaglity 3 injections per month, Butabital,Aceta/Caff (as needed) , 2 BC Cherry Flavored Powders, MigRelief, Ubrevly as needed, and now daily dose of Qulipta.