jenn12
How do I make my life less miserable?
I have been existing, not living, with chronic almost daily migraine. It is me and my cat in a tiny condo (and all that living in a charming old buildng brings). I might go outside 3-4 times each month due to migraines and pain. I am not on a preventative nor do I use devices due to adverse reactions. I am not able to afford acupuncture, etc. I have one medication that I ration and for the most part stops the pain. I do all of the standard self-care as well as therapy, meditation, music, TV, special tea that brings comfort, recognizing the good moments ...and where would I be without my fur baby cat. And there is still so much suffering and misery.
It would be so helpful to hear what others do to physically, mentally, and emotionally feel less miserable.
With gratitude,
Jenn
Holly Harding Moderator & Contributor
Hi
Additionally, it takes a concerted effort at seeking and feeling gratitude in my life. For example, I'm grateful that, even though I was sidelined from a career I loved, I am so glad I don't "have" to go to a job every day - and that I am released from the pressure that can come with it. For me, living with chronic migraine means having to be spontaneous - jumping into life when the pain is low enough for me to engage. Making plans rarely works - and the endless cancellations break my spirit due to the apologies I feel compelled to offer those I am letting down. It also is about making a concerted effort to let myself off the proverbial hook of blame that we are so easily ensnared by during a migraine life. For me it also helps to focus on my pup- all she gives me- the beauty of her- the sensation of her fur in my fingers that so comforts me while I'm struggling. And today, my small way to stretch myself out of my routine means bringing my computer out to my screened porch with quiet peaceful music playing in the background while I write to you.
All the small ways, the big ways, and everything in between. I also find such comfort in connecting with our community here- to be reminded on a daily basis that I'm not alone in this challenge. And, when I can't get myself to look up and out, I know that it's time to reach out to my therapist for a tune up.
It sounds like you do have some wonderful self-care techniques that you employ. Are you seeing a migraine specialist vs. a gp or a neurologist? There are over 100 different therapies (preventative and rescue) that are now available to help treat migraine. It might be worth revisiting your options in case there is something out there that can help decrease the severity or frequency of your condition. I realize that's easier said than done as so many treatments are pricey and come with side effects that rival the migraine attack itself. Please give us some of your load by sharing and connecting - we are here for you and in this with you. I look forward to reading what others have to share on this front. Most warmly- Holly migraine.com team.
sheilas Member
Always hopeful, Sheila
Cody Leach Community Admin
It warms my heart to hear how supportive and engaged your doctor is in your care,
Rebecca C Moderator
I think it is very important we continue to have our dreams and goals and move toward them daily, even if it's just a day trip, a new adventure, or a new activity. It may take a different path to achieve, but reaching out and grabbing the things that give us joy is invaluable. What are some goals or joys you have missed or wish you continued to pursue? What are some ways you, as someone suffering from migraine, can get there? There may be modifications, but keep striving ... for new ideas, different perspectives, greater understanding, clearer insight, joy, and miracles. How can you do this? Could you possibly help someone in your community, volunteer, or find an activity that you have been putting off? Participate in a community yoga or meditation class for an hour. These things have helped empty my days of monotonous and defeating thoughts and bring some light back. Thinking of you. I hope others chime in and offer their views. Warmly - Rebecca (community moderator)
jenn12 Member
With gratitude,
Jenn
Holly Harding Moderator & Contributor
CommunityMemberb9e927 Member
Ohhhh my I don't feel so alone in this migraine world !!!! I thought I was the only person suffering from chronic migraines !!!! The last 2 months have been absolutely hell I haven't experienced anything like that in my life I have experience chronic migraines but nothing like the last 2 months !!!!!!!!
I finally found this forum to see what I would find I also live in a small condo and just got a new baby kitten but honestly thought that was a mistake but honestly she makes me laugh so much !!!! I focus on the joys and laughter and not so much on the pain.
CommunityMemberb9e927 Member
I did a lot of crying but decided I needed to figure out what was happening. Some meds I can take are just too expensive for me. I had a nerve block down in my neck that went horribly wrong I can't even describe what happened but it was frightening I have a 3 disc fusion in my neck that has been redone
Nancy Harris Bonk Moderator
Nice to hear from you again,
Thank you so much for joining the conversation and sharing your support with us. Having a support network is so important.
How are you feeling these days? Sending out pain free wishes, Nancy Harris Bonk, Patient Leader/Moderator Migraine.com Team Member
CommunityMemberb9e927 Member
I would love to share a photo of her I didn't know you could share pictures on this site that's awesome
Holly Harding Moderator & Contributor
Melissa Arnold Community Admin