So a little bit of back story and explanation of my symptoms...
I had a car accident 4 years ago and hit my head which led to concussion and worsening headaches over the next few days leading to migraine.
Migraine runs in the family and I'd had about 4 or 5 a year since being about 12. They were getting worse before the accident but I assumed this was just because I worked in an special ed school.
However, my neuro believes the accident has exacerbated the previously episodic nature of my condition to now chronic at 26+ obvious migraine days a month (all around 3-7 days long) with prolonged aura and other debilitating symptoms, as well as the rest of the days being migraine without aura and a little less severe in pain intensity.
I have right sided weakness, almost constant nausea, regular vomiting, dizziness and visual disturbances with periods of blindness or reduced peripheral vision. I can lay in bed okay, which is what I do probably 80-90% of the time, but can't put my head back on an angle or lay in the bath due to the incline at the back without exacerbating the pain and other symptoms of the attack or generally just feeling an awful pull in my neck that feels like my head's being ripped away. I'm constantly fatigued because of the attacks and medication side effects (I take 100mg topiramate twice a day, zolmitriptan as an acute generally but I have sumatriptan injections which make my head feel like its burning from the inside out. But I'm having botox in March so I'm hopeful) so I walk with a stick, as well as brain fog, allodynia from my waist up and an awful memory.
I know a lot of these side effects are really common, but I struggle so much at home. I barely bathe because I cannot get in or out of my bath safely with how unsteady I am on my feet and eating's just as hard as getting out of bed. I'm miserable because I can't do anything for myself. If I could even just have 10 minutes of peace to myself in a shower it would be amazing but as it is I have help for everything. I'm appreciative of that, my mum is genuinely amazing, but I also feel so bad about it.
I feel like I'm not deserving of any help, like with getting a shower (I live in social housing and could not afford to put one in myself) because to so many people it's 'just migraines" even though I know how much I struggle.
Anyone else feel like this? Or had any adaptations done/bought any adaptations that have made their life easier or a little more manageable?