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Journal Prompt: What would you tell your newly diagnosed self?

What would you tell your newly diagnosed self? What advice would you give? What do you know now that you wish you knew then?

  1. Don't give up, keep trying different meds.

    1. Definitely to not give up. If I knew then that certain foods would egg one on, I would avoid it. Listen more to what my body is saying. Its ok to not be ok. Its ok to have no spoons available or if I do, not feel guilty for holding on to them.

      1. this is great advice! Thank you so much for sharing what you'd tell your newly diagnosed self. I love this. -- Warmly, Christine (Team Member)

    2. Keep a journal of food/drink and how you feel 20-30 minutes afterwards to see if there are any triggers. Get enough sleep and try to maintain a schedule. Educate your family on what a migraine is and how it feels. For example running my head full force into a cement wall or an ice pick to the eyes. Do the research on the meds available and find a doctor that specializes in migraines or a neurologist.

      1. Don’t be a hero. After a concussion brought on chronic migraines I taught elementary school for three years in excruciating pain before finally retiring early. Take care of yourself first.

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