With my chronic migraines, I find it extremely challenging and exhausting to navigate healthcare. I am currently trying multiple preventive migraine medications and I am in the process of finding a regimen that best suits my body. I am sensitive to medications and in the process of coming up with a regimen, I do have some valid questions to my neurologist about the following
the side effects I am experiencing and how to manage them
the dosage increase/decrease to experience optimum headache relief
timing of the medication
drug interactions , since am on multiple preventives
questions on rescue meds and combining with preventives am taking
I message the doctors through the healthcare messaging portal and I am not getting a response even after follow up messages/phone calls, I am seeing this pattern with all the neurologists, even the ones with big reputed hospitals. I don't see this lack of response with doctors from other departments. My understanding is that the neurology doctors are busy and burnt out, probably due to the overwhelming number of patients needing neurology care and also due to the staffing issues in healthcare. While I understand this, I feel helpless and anxious when I need my queries clarified about the medications and don't have any support from my doctors. The appointments are always booked out for 3 to 6 months, so having to wait so long to clarify my queries and to come up with a medication protocol is exhausting. BTW I am not working currently due to my chronic migraines, and the plan is to get back to the workforce once my migraines become manageable with the medications, so I am running short of time here and feel the self pressure.
Do any of you have such challenges and can you share some pointers that will be helpful for me to navigate through this scenario.
Thanks in advance for taking the time to read my message. I appreciate your help 😀