Migraines have evolved i guess

I usually only get a migraine every 3-4 weeks. I have also had blood work and ekg recently, both fine.

I'm so glad that you shared your experience on this post here. We have a community of people living with migraine who share about their experiences too so we can all help to learn from one another, and honestly just to feel a little less alone with them.


You mentioned that you've had some tests done including CT scans and MRIs. Did you get the results from them yet? Although they can be a little scary to go through, I always appreciate when the doctor orders imaging and lab tests to really get the best understanding of what's going on. You want and need answers as to why you're having these symptoms.

If you haven't yet gotten the results, I hope that you'll receive them soon and can help shed some light on what's going on.

You mentioned that your doctor said it wasn't uncommon for migraines to change. Did he comment on the symptoms that are accompanying the migraine? That's what stood out to me most reading your post. It sounds like you're seeking an understanding of the symptoms outside of the "traditional" migraine pain and specifically why they're lasting so long.

I know that people can have a wide range of "weird/random" symptoms with migraine, but it seems that your concern is more that these are new symptoms outside of the head pain.

That was a great approach to seek another specialist - with the ENT.

If you have gotten the results of your test and they all came back "clean" then I would ask the neurologist what he recommends to do next to get a better understanding of what's going on. And if he feels that it's "just migraines" what can you do to manage the symptoms better given the duration of them.

I hope that something that I shared here can be of help to you. My heart is with you knowing that it can be so challenging to deal with chronic pain.

One last thought, is I've had a lot of success with adding in non-conventional treatments with my conventional treatments. For example, I believe that rescue medicine is the most effective approach to "break" a migraine. However, I have found dietary changes, yoga, acupuncture and things like that to be helpful in preventing migraines. There are lots of options that you can explore. But if the neurologist feels like he's exhausted all tests for further explanations, I personally would then start to seek other options that can help with addressing the symptoms. Either way, definitely stay connected with your neurologist and all the follow up appointments, because they're the most important resource and partner to have in managing migraines.

Thanks again for sharing your experience and I hope that something that I've shared can help you along your journey.
Best,
Alene, moderator