mikes
February 27, 2019
Well been having migraines since 2011 and diagnosed in 2012. I take sodium valparate morning and evening and take sumatriptan on the occasion a bad migraine hits. I get them twice a week on average. Last night woke up at 2am to the worst migraine. Took a sumatriptan then when back to bed. 20 mins later until midday was being sick every 30mins. Temp going hot and cold. Didn't ear until 6pm. I feel now I am at the point I can no longer cope. These migraines are taking over my life and my families life.
Nancy Harris Bonk37
March 4, 2019
Hi MikeS,
Migraine disease can be debilitating, frustrating and exhausting - I'm sorry you are going through this. You're not alone in feeling this way, migraine disease can leave us feeling isolated and alone. Let me see what information I can give you that may be helpful.
If you haven't been to see a doctor who is an expert in treating migraine and headache disease, I would encourage you to try and see one. True migraine experts are board certified in headache medicine, which is different than being certified in neurology. The thing is neurologists have a hard time being experts in one area because they treat so many different disorders such as multiple sclerosis, stroke, Parkinson's, epilepsy and others. When you get a chance take a look at these articles that detail how these doctors are different and how to find one; https://migraine.com/living-migraine/a-new-perspective-on-migraine-specialists/ and https://migraine.com/blog/seeing-a-board-certified-headache-specialist/ and
https://migraine.com/q-and-a/finding-specialist/.
I'm currently seeing my 5th true migraine expert and am finally getting somewhere.
Having a good support network is important when living with chronic illness. I see my counselor about once a month or so and she helps me keep things in perspective.
I'm going to stop now, so I don't overwhelm you. Let me know what you think of this information and we can go from there!
Wishing you a low pain day,
Nancy
tomstill
June 7, 2019
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lucilebottein
January 13, 2021
You are invited to participate in a study about migraine evolution during lockdown. My study, ‘Exploring which factors influenced whether lockdown had a positive, neutral, or negative effect on migraine disorder’, aims to identify the main causes behind migraine evolution during lockdown.
The study will take place in two steps. The first step is an interview which will be conducted on Zoom (you can choose to keep your camera off) and should last approximately 15 minutes. The second step will be an online questionnaire which will take about 10 minutes to complete. Participation is entirely voluntary and all of your answers remain anonymous and confidential. You can find out more about the study in the attached information sheet.
If you are interested in taking part, please email me at lucile.bottein.18@ucl.ac.uk.
If you have any questions or concerns, please email me.
Best wishes,
Lucile Bottein
Psychology with Education
Year 3
lucile.bottein.18@ucl.ac.uk
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