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My migraine is changing - help

I have suffered with migraines without aura for years. Now, out of the blue, I am having visual and auditory hallucinations. Any ideas why?
Really wondered if I was just going crazy until I read some descriptions of what a migraine aura can be like. Nice to know I'm not alone.

  1. I had a similar experience. My migraines started without aura, and then changed to where I started getting them with visual and olfactory aura. I never really questioned why they changed and just kind of rolled with it. Over the years my visual and olfactory aura/sensations have changed a bit. The smell was originally gasoline type smell and is now more pleasant, like floral. I like it better and will go with that. The visuals have always changed and depend on how sleep deprived I am. I used to get straight up hallucinations, where I was seeing shadows moving that weren't there and other similar occurrences. If I had enough sleep, it would just be flashes or spots in my vision. Now I think I might be seeing things, but their not distinct like they used to be. It's more something in my peripheral vision. I've had my eyes checked and they are fine. My eyes also lose focus. I'm also having changes in how my headaches feel, and I'm starting to get new headaches that seem like my Dad's cluster headaches but are missing some of the symptoms. This stuff is so confusing sometimes.

    I wish I had an idea why this all happens, but I just wanted to reply and let you know that you are not alone. It's happening to me too, and I am also searching for answers.

    1. Hi @CrazyDoodleGram,

      I can see how that would be unnerving for sure! Did it take you a while to realize that it was a migraine symptom?

      ~Melanie (team member)

    2. Yes! Sadly my triggers and alerts had stayed the same for so long that it took a while to connect the dots. My family doctor who waved it off retired and my new younger Dr said right off to prepare for a migraine. So, as I read articles here I am fully understanding what new has been learned. Wonderful! Having to deal with these headaches for 59 years now I've learned for the most part my triggers and try very hard to avoid. Mother Nature and her pressure fronts always knock me down. Something I just learned about myself is I grit my teeth at night, messes with the neck muscles, and viola I wake very often with a headache that sometimes (to often) turns to migraine.
      Again, I am so glad to have found your site. It certainly helps to NOT feel like the Lone Ranger.

  2. Hi @CrazyDoodleGram,

    Ugg!! I can tell you you're not alone in having migraine attack patterns and symptoms change over time, mine sure have!

    Triggers are tough - some we can avoid, others not so much. Changes in the barometric pressure can trigger attacks for many of us. There are a few things out there that may help from medications to ear plugs from a company called WeatherX. Let me share that information with you;
    I've heard from some that the WeatherX ear plugs are useful, I've not tried them, but that may be something to look into.

    I also wanted to mention it may be worthwhile to look into a night guard for teeth grinding. And maybe talk to your doctor about getting a sleep study? When we wake with morning migraine pain it may be an indication of a sleep disorder, of which there are many! My study identified restless leg and periodic limb movement disorder - both helped with muscle relaxers and my AM pain is less frequent.

    I hope this helps! Let me know what you think - Nancy Harris Bonk, Patient Advocate/Moderator

    1. There is a drug called Mirapex that will knock out restless leg. Try it! It works for me 100% of the time and I get restless legs a lot. Phenergan causes restless legs for me. I try to use Zofran but it doesn’t work as well for me. My migraines cause nausea immediately. Ask your doctor about it. I hope it helps...

      1. Thanks for sharing what works for you. Of course what works for some may not work as well for others, but it's always good to know what is helping others. Thanks again, April - Team

      2. Thank you , for your suggestion. I did try that medication, but I wasn't able to handle some of the side effects. I've found daily walking and my tincture at night do the trick!

        Have a good day! Nancy Harris Bonk, Patient Advocate/Moderator

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