caret icon Back to all discussions

Nothing Works - Hemiplegic Migraine

I am looking for some help on figuring out next steps in my treatment journey. At this point, I’ve tried CGRP inhibitors, beta blockers, anti convulsants, anti depressants, triptans, Botox, toradol, IV treatment, steroid packs, osteopathic manipulation, neuro physical therapy, dry needling, literally everything. Over 15 different prescriptions. It’s gotten to the point where I’m on day 14 of a migraine that led to paralysis in both legs (usually just occurs in one side), I’ve had a sharp skull-feeling pain on one side and my usual throbbing on the other, in addition to my numbness/tingling/weakness and nausea/vertigo. My neurologist has now stated that they “do not have any other options available” and has told me to just go to the ER to get more IV treatment.
I’ve been hating wicked vivid dream, intense sweating, night twitching (according to my boyfriend). My eczema flares up on my face and ears with my migraine.
Every medication I try will work for a little bit, but then it’s as if my body gets used to it and even upping the dose does nothing. I have zero side effects from taking anything. I’ve tried diet changes, exercise level changes, blue light glasses. Nothing helps.
Does anybody have any suggestions at all? Or maybe ideas of what sort of specialist I should see?? I’m wondering if my diagnosis of hemiplegic migraine is even right at this point. MRI came back clear to rule out MS.

Please read our rules before posting.