Hi Andrew99,
Thank you for sharing your difficult journey with us. I'm so sorry things have been so rough. I wanted to let you know you're not alone, we're here with you!!
Being on SSDI can be a blessing and a curse, in my opinion. I've been on it since 2010 after trying to work a part time job I was overqualified for, to prove to myself it was time to apply for SSDI, it was.
Finding purpose is a challenge, but I've found mine being a migraine disease and headache disorder patient advocate. Sharing our journey is a great way to connect with other people who are in similar situations.
You could also seek out volunteer opportunities in your community. When you're having a good day, you can participate.
Being on SSDI is an adjustment for sure - it was for me!!
Let me know how you are doing,
Nancy