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Spinal pain as first symptom of migraine. Every step feel like the spinal fluid has taken a vacation.

Firstly as a new member, thanks in advance for sharing. Have had these for about 15 years. The resulting migraine lasts for about 5 days.
Which seems too long. In saying that half a day is too long! Used to go to ER at hospital and they explored meningitis (which it wasn"t) But got a drip with something in it which certainly shorten the duration. But now they pretty much say "don't bother wasting our time".This spine thingy lasts the whole time. Has anyone had or have similar experiences?

  1. This is not something I've experienced but hopefully you'll hear from others who can relate to what you're experiencing. Is the entire spine painful or certain points on your spine? April - Team

    1. Thank you for sharing your experience with us - we're glad you found us!
      Have you had an opportunity to discuss a cerebral fluid spinal leak (CSF) with your doctor? I believe there are a lot more of these that go undiagnosed. Here is information on it you can discuss with your doctor;
      If your doctors aren't listening, it's time to find some who will!! They are out there.
      We're here for you, please let me know what you think! Nancy Harris Bonk, Patient Advocate/Moderator

      1. Thank you Nancy. Had never heard of that. Will def be bringing that into next appointment with Dr. Cheers

        1. Migraine is complicated to live with and treat! You're not alone in this. Have you had an opportunity to reach out to a doctor who is certified in headache medicine? Not all neurologists are. I'm seeing a new certified expert and she is remarkable. She's mentioned things I've not heard about before! These expert doctors can make a huge impact in our care. Let me share information on how these doctors are different and how to find one;

          Let me know what you think! Nancy Harris Bonk Patient Advocate/Moderator

      2. Just want to say hello and welcome to the community, Kiwi! I hope we can be helpful for you!

        Here is another example you may have heard of about spinal fluid. You might know that when a woman has a baby, it's pretty common for her to have pain medication injected into her spine. Sometimes, that can lead to an awful spinal headache caused by fluid leaking from the area around the spine where the injection was done. It can happen for all kinds of reasons, but that is one of the most well-known ones.

        I definitely agree with Nancy that you should see about getting tested for issues in your spine. Keep asking until someone listens. You deserve to be heard and taken seriously. <3 Keep us posted! -Melissa, team

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