Is anyone status migrainous? or has migraines over 100+ days
Yes, my pain level never drops below a 5 and generally seems to "live" at about a 7. Botox, Zomig, Imitrex help dull the pain but it never goes away.
Zomig & imitrex both did not work for me. ( im triptain resistant) Had my 2nd round of botox today. Hoping i get some relief. .my pain rainge is similar to yours.
do you mind if i ask how long you have had this condition/ been living with it?
I've lived with it for over 40 years.
Join the club! 2 1/2 years of pain level 4 and up (5- most days now). It sucks balls .... just lost my job and house because of it. Constant low level migraine with 2-3 "flares" of severe pain each week - anywhere from a couple houes to days on end. Even urgent care visits are a "success" when they get me back down to a 5/10.
I feel your pain and I am sorry to hear that you lost your job and house. I also got a major migraine attack (with fainting) in july 2017 and was in and out of ERs and admitted 3 times and my employers did not care about me. They emailed me a termination notice in September so I've been home since. For some reason these migraines have been so tough to get rid of. I have had two rounds of Botox, I have become triptan resistant, tried propanolol, atenolol, Gabapentin, and many more. I am on Zonizamide and started DHE injections in myself just yesterday. I haven't had a migraine free day in at least 3 months and it increases with activity. Mine is supposedly due to hormones. The pain has increased a lot the past 4 days and I am in status migrainosus. If anyone knows of anything "natural" that works...please let me know as I truly believe my body can not handle any more meds. I think it is rejecting everything.
I am just about at 100. Last time I remember not having one was the first week of June.
I think mine was driven via UV light though. My office moved from 15 minutes from my house to about 40 minutes from my house. But I did learn that the safety glass in car side windows block between 55% and 80%. Not the 97%-100% of the front glass. So my next large purchase is going to be UV blocking tint on my car windows.I got rose tinted glasses to help with my light issues, maybe they might help you.
I had a pair of FL41 glasses that had the almost rose tint. Problem was they were so low grade other then the tint, I couldnt stand to look through them, optically incorrect that they were.
