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Worsening headaches after 50

I turned 50 in January. I have had migraines my whole adult life. My headaches are getting worse. They last few have been bad ones where I have been vomiting and feel the worst I have ever felt. I actually went to the ER but left after waiting for almost 3 hours in waiting room. I have a dull headache daily, mainly starting in the middle of the night. My neck is incredibly tight. I have tried so many different medications. I need a cure. I can't stand this. I feel like I'm not living to my fullest. I know no one here had the answer, but I was hoping others have had same situation and maybe found some relief. I can't keep doing this.

  1. Hi 4jene4,

    Thank you for reaching out to us. I'm sorry you are struggling so much right now.

    Daily head pain is awful. It's draining, exhausting and so frustrating. Looking for answers can be just as frustrating. Have you had a chance to see an expert who treats migraine/headache disease? These doctors may be different from neurologists in that they have extra certification in headache disease and treat patients like us all day, every day. I'm currently seeing my 6th true expert and making progress. You can find these expert doctors here; https://headaches.org/resources/healthcare-provider-finder/.

    The other thing I wanted to mention is sometimes when we wake in the morning or middle of the night with head pain, it may be an indication of a sleep issue, and not only sleep apnea. It may be worthwhile to have a conversation with your doctor about having a sleep study. This article has more information on sleep issues after 50.

    Please keep me posted, and let me know how I can help!
    Gentle hugs,
    Nancy

    1. I spoke to my migraine doctor today. We are going to try Emgality. I tried Ajovy and Aimovig in the past. The Aimovig had given me constipation and didn't seem to help the headaches. I am also going to try Ketorolac injections when I get a bad migraine. I'm hoping this will help. It will be a few weeks until I can try these. I currently take Amerge when I have a migraine. It is hit or miss it it works. Has anyone has success with Emgality or Ketorolac?

    2. Did the Emgality help? I am also 50, in peak migraine form.

  2. Hi ,

    I don't have any personal experience with the CGRP medications, so hopefully others will be along shortly to share theirs with you.
    However, I have heard good things about Emgality.

    It's always good to have another tool in our migraine regimen and hopefully ketorolac will be helpfu. Some find it very helpful, others not so much.

    Please keep me posted,
    Nancy

    1. I haven’t tried Emgality & have just started Ajovy & seeing some better relief than I did in Aimovig with the daily headache. Definitely have had decreased intensity & number of migraine days. I’m down to 18 a month from 25. When the migraine begins(I have aura) I take Ubrelvy & it works better than anything I’ve taken. So I have great luck with the CGRP’s. Wish there was one that I can take everyday as a preventative so I can stop the other medications I’m on. But I’m hopeful that’s on the way.

      1. Hi ,

        Good to hear - thank you for sharing that with us.

        Ajovy is a migraine prevention medications, taken monthly, not daily. Some people find a combination of medications and the CGRP injections work well for migraine prevention.

        Keep us posted!
        Nancy Harris Bonk, Patient Advocate/Moderator

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