<p>It sounds like you have had to try to take the reins in your own treatment. That is very frustrating. As the Migraine team indicated, you need a neurogist specializing in migraine. I have had to have varying treatments as my body changes, as I also have had them for at least 40 years, beginning in the Caffergot era. I was so happy when Imitrex came out. But now I cant use it since I had a migraine induced stroke in 2002. Now I am in my 60’s & am disabled with intractable migraine. The good thing is that my daily night meds keep it at bay most of the time, and breakthroughs are not very common. I am on Topiramate, Citalopram, and Nortriptiline. This is after long trials & tweaks of meds. You need to feel comfortable with your neurologist. He knows my different kinds of migraines( I have 3). And to treat other headaches that can trigger migraine, besides my most common trigger of barometric changes. Also I am very careful to not take too many meds to prevent rebound so I also use essential oils, massage, cool packs, and very important- hydration. Hope this helps annyone. Even if im disabled from my work(im an ER nurse) I still have a full & happy life.</p>
dollysweeney Member
<p>Look up Bickerstaff migraine and suggest to your neurologist.</p>
Joanna Bodner Community Admin
<p>Hi rainbow, </p>
<p>Thank you for taking the time to comment. I am so sorry you are experiencing such pain and that migraine has dramatically altered your life. This is certainly NO way to have to live. Please know that you are not alone and we understand what you are going through! We are always here to support you. </p>
<p>It is very frustrating to read that your doctor is not providing you with the care it sounds you are in desperate need of! Have you by chance ever seen or considered seeing a true headache/migraine specialist? Here is some information on how these doctors are so different and making the decision to see one: </p>
<p><a href='https://migraine.com/blog/how-are-migraine-specialists-different' target='_blank'>https://migraine.com/blog/how-are-migraine-specialists-different/</a><br>
<a href='https://migraine.com/blog/making-decision-see-headache-specialist' target='_blank'>https://migraine.com/blog/making-decision-see-headache-specialist/</a></p>
<p>Also regarding Botox, they do have a savings program that may be worthwhile for you to look into which you can save on out of pocket expenses for the treatment. You can <a href="https://www.botoxsavingscard.com/" target="_blank" rel="nofollow">click here</a> to learn more about it. </p>
<p>Lastly, try to not to give up hope for better days ahead!! I know it may seem like you have explored all options to find relief, but there are many treatments that can be considered. Here are two articles which discuss the topic of having tried everything: </p>
<p><a href='https://migraine.com/blog/tried-them-all' target='_blank'>https://migraine.com/blog/tried-them-all/</a><br>
<a href='https://migraine.com/blog/ive-tried-everything-2' target='_blank'>https://migraine.com/blog/ive-tried-everything-2/</a></p>
<p>We are happy to have you part of our community & I hope you find some of this information useful! Thanks again for reaching out & keep us posted on how things are going!</p>
<p>Warmly,<br>
Joanna (Migraine.com Team)</p>
kimcurtis-reed Member
<p>I feel I need Mri the pain and symptoms r to much to handle I have a 4yr old and it interferes with everything...I'm n bed a lot hurting way to much the loud noise and lite sensitivity is really bad I see spots vision blurry I hate it</p>
lanzivino Member
<p>Yes I do the diet thing. I read labels on everything. So much of the migraines come from all the preservatives in the food we buy. Labels are deceiving they will us other words for things such as sugar free which we know we can have nothing sugar free. One of course is Aspartame which has other names for it. Also when it says natural flavoring it has either MSG or nitrates which is a huge migraine trigger. It is best to it whole and clean food. Hope this helps you.</p>
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