Draining the Life Out of You

By Steven Workman

2 min read

I am a fairly energetic person, or at least I was before the migraines became so consistent. Even through the episodic migraines I have lived with for years now, I always managed to find a way to power through and be productive on most days with the exception of the really bad migraines. On the occasions that I get the extreme migraine, it definitely knocks me off of my feet until my medication can eventually get it under control again.

Will my abortive medication work today?

Lately, I have discovered a downward spiraling trend with my migraine pain. My abortive, which used to work exceptionally well, has started to lose its effectiveness. I still count on my medication to break the cycle of most of my episodes, but on the rare occasion that I have a bad attack, the medicine is beginning to falter. I have been able to count on my medication for quite some time to get the job done. Unfortunately, things are beginning to change. On some days, the medication works great, while on other days, the medication barely even takes the edge off.

Does sleep help the migraine pain?

The result of the medicine beginning not to work as well leaves me to endure the pain for considerably longer, which can lead to a depression or just a generally unhappy mood. It has also begun to take its toll on me physically. I find that more and more, even after a good night’s sleep, I have no energy in the mornings when I get up. The pain becomes a drain on my energy regardless of how much sleep I can get at night.

How am I getting through the day?

The alarm goes off, and I sit up and turn the alarm off just like before, but lately, I've been spending the next fifteen to twenty minutes sitting there on the side of the bed with my face in my hands. I spend this time trying to grasp that the new day has arrived, and it is time to get started once again. These are the days where I spend almost half of my day fighting falling asleep at work. Unfortunately, eating does not seem to help one way or another, beyond the fact that if I do not eat, I am almost certain to end up with another migraine.

What can I do about it?

At this point, I am not sure what to do about it. I am afraid to ask my doctor about trying a different abortive medication because on most days, the one I have really helps. But on the days that my current medication does not help, it almost seems to make things worse. I have also experienced that anytime I try explaining the feeling drained or exhausted from the migraine pain, the doctors simply want to prescribe antidepressants. It is like the doctors do not realize or understand that the pain from a severe migraine can drain you physically and emotionally without you having to be officially depressed daily.

Do your migraines drain you physically and emotionally?

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intricatepurple Member
This spoke to me on volumes that could wake the dead, and exactly how i am feeling today. Thank you for sharing this because some days I think I am the only one or that I am crazy and need to be committed to an institution. I am starting to feel not so alone in my struggles.
1. Steven Workman Moderator
 IntricatePurple you are definitely not alone. We are all in this together even though sometimes it may not feel that way. Sometimes we have to be our own support network to make it through the harder days. Thank you for sharing your own experiences. Hopefully you will find some relief and rest soon. Steven Workman. (Author, moderator)
2. jrmartin Member
 I have had Migraines/Cluster Headaches since 1991 A present from the 1st Gulf War. I have tried Botox & every other Med you could Prescribe to, I'm on my 3rd Month of Aimovig & they have Doubled up the amount to see if it helps?? I have had Occipital Nerve Blocks with no relief, I'm hoping the Double Dose Of Aimovig Helps!!! After that I don't knew whats Next?? The Meds I'm taking give me a little relief, but when Your Body is so drained From the Migraines I do my Best to Get along!!! I don't go anywhere without Shades & a Retired Marine Cap To block the Lights that Make it more Extreme!! One thing I learned is to stay away from the ER because just think I'm looking for DRUGS!!!All in all I work my way though it! Semper Fidelis!!!
goldstein Member
Your article summarises well my feelings at several points in my life. As my "lines of defense" as I call them (first, triptans; then, NSAIDs; then, assorted medicines) fall, despair and desperation set in. I realize I go through phases, worse or not so much. What I try to do when a rough phase is settling in is to reduce the triggers, by abolishing alcohol, sleeping regularly, meditating, taking magnesium, fish oil and melatonin regularly, and using ice packs, homeopathic mecine and mint oil as soon as I have any signs of the migraine (that is, before pain sets in). All of this to try to reduce the general level of inflammation in the body and try to "ride out" the bad phase. When all else fails and pain and other symptoms are just too intense to endure, then emergency room or GP it is. I've had to undergo at least a couple of prophylactic treatments to be able to go back to a "base level" of low inflammation. Thanks for the article!
1. Steven Workman Moderator
 Goldstein you brought up a good point about going through phases. I think most of us go through those phases of desperation, hopelessness and anxiety; but then also go through phases where things aren't quite as bad. It is at times exhausting. You also mentioned homeopathic remedies which is something I'd personally like to research and try. Thank you so much for sharing your experience. Steven Workman
ladybugsy Member
Hello, are you by chance taking Milk Thistle? I began taking it years ago and found it changed the effectiveness of my migraine medicine to the point it stopped working. I talked to a pharmacist to see if he thought I was right and he said yes, only take milk thistle for 3 days, then stop for 2 weeks; repeat. I only eat organic food now and the days of my meds not working are much fewer. They take awhile to work at times, but eventually kick in and knock it down. The liver is key; if you can try to eat a liver friendly diet, it should help your meds work consistently,,, hopefully! I hope this helps! I can usually trace my meds not working back to something I've eaten that I shouldn't have; or had too much; ,,, everything in moderation it seems, will help. Take care and good luck! One other thing; if you haven't already; see if your doctor or a naturopath will order you a CRP blood test as well as do allergy testing for foods that cause an inflammatory response. Then cut those out of your diet and see if you feel better.
1. Steven Workman Moderator
 Ladybugsy no I've not taken milk thistle. I have had blood work done to determine what allergies I do have and it was quite the eye opener. I've met several people that have all but completely gotten rid of migraines by changing their diet to organic and gluten free but it is not something I have tried personally. Thank you for sharing your input. Steven Workman
john0427 Member
Doctors not only don't realize the amount of pain they don't care that's the real problem
1. Steven Workman Moderator
 I understand your frustrations as I've shared in them from time to time. But I can't help but wonder is it truly is a lack of empathy, or if something else is holding them back from doing better. Maybe they simply don't have the same level of understanding if they are perhaps new to the field, or maybe if they have been in this field for too long, perhaps they are simply stuck in older outdated remedies. Thanks for sharing your input. All the best. Steven Workman
cooklauriea Member
Steven, have you had a sleep study done? As a respiratory therapist, the symptoms you are describing could be OSA (obstructive sleep apnea). Sometimes we get so focused on migraines (after all it controls my life on most days) that we forget our bodies could have other problems. It might be worth your time to take an overnight test. Lack of sleep is one of my biggest triggers for migraine. Best wishes!
1. Steven Workman Moderator
 Actually yes I've had a sleep study. I also have sleep apnea and the little machine that goes with it. It definitely adds to the problem. But I also run into the problem of losing my breath while I'm wide awake as well. It happens at the most random times too like sitting at my desk at work or watching television. My hope is that losing some of the extra weight will at the very least help to improve my symptoms. Might just be wishful thinking, but that's the hope. Thank you for sharing your thoughts on this. Steven Workman
2. boehmec Member
 Steven, loosing the weight will help. I had to attack it twice...first was a breast reduction (probably not your issue, but...), and a month later, with some focused neck muscle work, they were reduced quite a bit. I’ve also had bariatric surgery, and the weight holds lots of inflammation, so I’ve been told. That helped, too. Good luck!
tortoisegirl Member
Yes, I can so relate - chronic pain is draining! Also, so many of us have other health issues that can compound the effects (neck, gastro, bladder, skin, and lots of sleep issues for me). Depression is common, but I also think doctors are often too quick to jump to that if you are chronically ill and report feeling sleepy/tired/fatigued. I second the comment on getting a sleep study done, if you actually feel sleepy (not just tired or fatigued, which are actually 3 different things). They can diagnose more than just apnea, and apnea can occur even if you aren't overweight and don't snore. I have mild apnea, but also a limb movement disorder (kick in my sleep and cause micro arousals, disrupting sleep), insomnia, a need to sleep more hours/night than most (10+), and idiopathic hypersomnia (like narcolepsy, but diagnosed if a daytime nap test shows you fall asleep quickly, but not REM).
1. Steven Workman Moderator
 You are so right. I've had a number of doctors try jumping straight to depression when I mention feeling fatigued due to lack of sleep. It's so frustrating when depression seems to be the "go to" diagnosis. I've even tried a few different medications for it to appease the doctors so they could see for themselves that it didn't help. Hopefully they will figure something out eventually. Thank you for sharing. Steven Workman
Member
No matter what changes I make in my life, migraine is something I contend with daily. That being said, I do have a firmer grip on it at the moment. But there seems to be a cyclical pattern I can't break out of. I will go along pretty well - my abortive medication works and I've learned most of the triggers to avoid, even though they do change as I get older. But a few times a year - whether it be related to temperature, barometric pressure, allergies, light, what have you - I will go for a few weeks at a time with daily insurmountable head pain and all its cousins. This leads to fatigue which in turns triggers my depression. I've learned to head off the worst of the depression (it actually is depression in my case) by getting ridiculous amounts of rest balanced with exercise. I find that when I feel my fatigue building up regardless of rest, I will do something that would seem counter-intuitive like HITT on my stationary bike. Oddly, pushing myself on the bike seems to trigger something (beyond the 'Oh boy. I'm dying now for sure' feeling) and I can break free for a bit. I wish I understood it better. Endorphins probably play their part. But I can definitely relate to your struggle.
1. Steven Workman Moderator
 I'm sorry that you have to go through that cycle, but it seems like you have a pretty solid counter measure for working through it. I've been looking into getting back in a local gym myself. I've been told by a number of people that exercise in general has made a huge impact on their migraines, both in frequency and intensity. Thank you for sharing your experiences. Steven Workman
bayoutigress Member
Wow, this me! Being in constant pain just wears me out. Some Drs don’t get how physically exhausting it is to fight it day in and day out. Depression may or may not be part of it. I really don’t think anyone who is not in some kind of constant pain understands the physical toll on your body. I know I did not realize how bad it was until I started wearing a fitness tracker and monitoring my heart rate. My heart rate tracks my pain level. About once a quarter I hit a cycle where none of the standard protocols work. I have found a new Nureo who is more aggreessive once a treatment stops working and does acute interventions, like nerve blocks and infusion therapy, in his office instead of having to go to the ER or Urgent care. These are not something that can be done often but a few times a year to break a bad cycle. Something you might want to ask your Dr about. And if they cannot do it they may be able to arrange for another Dr who is trained to do it. I am on Neuro Dr #4 before I found one that is as agressive with treament as I would like.
1. Steven Workman Moderator
 You are so right about others not understanding how drained you can feel. It is hard to even describe with enough detail to make them understand. It sounds like your current neurologist has some pretty solid determination and that's awesome. Thank you for sharing your experience. Best wishes. Steven Workman
amp254 Member
I am also have chronic severe migraines and have for many, many years. I use Zomig now as a rescue medication and have for over 15 years I think. When I first started I used half a 2.5 mg pill and that worked to stop my migraines years ago before they became as frequent and as bad as they are now. At some point had to start taking the whole 2.5 mg. pill to get rid of them. Just recently had to increase to 1 1/2 pills to stop my migraines. Don't like increasing dose since it causes side effects (neck pain, muscle tightness and pain, constipation, etc.) but have tried many meds without success. Hope you can find what works for you!
1. Steven Workman Moderator
 Amp254 thank you for sharing your experience. One thing I have noticed is that a lot of the time if my imitrex pill does not work, the imitrex shot will work. I do not know if that is due to dosage or the way the medicine is given. Another thing I fight with a lot is dehydration. I suppose I always stay right on the edge of being dehydrated. Many times that is what cause the migraines. Thanks again for sharing. Steven Workman
Member
Very well-written and true for me as well. Do you think the effectiveness of your abortive has been affected because it's gone generic? I feel that is true for mine. I have also run into the problem of refilling my abortive prescription "too soon" so my insurance would not cover the cost. Why does the insurance company get to tell me how many pills they will give me for my migraines? They are okay with me suffering through the rest or going to the ER? I don't like that at all.
1. Steven Workman Moderator
 I really could not say with any certainty if medicines going generic had an effect one way or the other. I believe the meds I take we're genetics before I started taking them. It is unfortunate that the insurance companies limit how many pills they will cover per month, but there seems to be a standard across the board with the insurance companies, because I've not heard of a company that does not apply limits like that. Thank you for sharing your experience. Steven Workman.
mrst53 Member
Steven, have you seen a pain doc? Sometimes they understand the pain better than other docs, Other than that you need to find a more compassionet Nuero doc. If they don't specialize in migraines, then they may not understand the feeling of exhaustion that comes with migraines-pre, during and post. I feel for you.
dizzylizzy7 Member
After having several months of vestibular migraines and before my migrainne episodes morphed into the more well known headaches I had about 6 months where my main symptom of a debilitating fatigue. My PCP could not find a reason for this. Finally someone who had adrenal fatigue suggested I may have that. A non traditional healer diagnosed adrenal fatigue and I got the help i needed. I am convinced that this period of fatigue was a different manifestation of the shape shifting migraine. have others had months of fatigue that they felt was due to migraine?
1. wendyvernon Member
 I left my job in January because of severe fatigue that my doctor can't find a medical reason for. I mostly tell people I left because of migraine as I do believe this fatigue issue was brought on somehow by my chronic migraine. I have no idea how but I feel that it has to be related as the migraines got really bad just before this fatigue kicked in hard. I do feel like my fatigue came on gradually though getting worse until I was no longer able to function on a daily basis. I felt like I was dying and there was nothing that my doctor could find or do to help me. It took months after I left my job to feel any better but now I can cook meals most nights unless migraine interferes.
l1rwdn Member
That’s the thing. I suffer from terrible aches and tiredness much more so than headache pain. But nobody understands that, so I just say I have a migraine headache. Mine last all day, and then the next day I am usually pretty fatigued despite a good night’s sleep. Fortunately I am retired now and no longer have to try to explain once again that I am suffering from a migraine and need to take another day off of work.
lightweaver Member
It becomes isolating and depressing so often.
msevillam Member
I hear you Steven. The fatigue experienced during migraine attacks is almost as disabling as the headache phase. My migraines got worse about 2 years ago. Medication wasn't working efficiently anymore. I would take Relpax (eletriptan) and the pain would come back after 6 hours and this would be a 3-4 day cycle. The neurologist told me that my body needed to detox after 30 years of taking migraine medication. I went through 3 months of no medication at all, not even a Tylenol. Pain medication is now working again. I started a preventive treatment with Amitriptyline which is an anti-depressant but also used to treat chronic pain. I have seen an improvement. In order to go through a detox period, you need to have the support from work. You'll be missing work more often since you can't treat the pain. It is tough, but for me worth it. Good luck my fellow migraneur, I hope you find a solution.
theskyremains Member
"Migraine sleep," as we call it in my house, has no effect on the fatigue for me. I can sleep all day with a migraine and wake up feeling just as fatigued as before. I suspect this is because it isn't a body fatigue or the normal mental fatigue at the end of the day. Often when I'm in prodrome, the fatigue hits hard and I turn to coffee to try to stay alert at work. The more coffee I have, the more amped up my body gets (jittery, sweaty, increased heart rate, etc.), but it barely touches the fatigue. My body isn't tired; the fatigue is literally all in my head. It's frustrating for sure. I'm learning to accept that I just have to wait it out and not judge myself for needing to sleep or feeling exhausted for "no reason." Instead of trying to fight an attack or power through with meds, I've been attempting to use only enough to cope (trying to avoid the MOH cycle) and instead focus on lifestyle factors, including the emotional aspect of migraine, to try to reduce the frequency and severity.
dfonner Member
Wow, That exactly describes how I feel right now! I slept 11 hours last night and finally made myself get up. It's 3pm and I've accomplished nothing. OK, I'm digging thru old emails and such. But you are so spot on. It doesn't help that it's been raining and dreary for days so my head has been aching too. Today is better even with the t-storms that are going on right now but I have a thermacare on my neck and shoulders for the stiffness and pain. I'm right there with you, I've gone thru lots of preventatives over the last 20 years. I'm at a point in my life where my migraines were slowing down a bit but when they come it's for 2-5 days and I just get dysfunctional and exhausted. It's not a matter of not sleeping, I sleep great unless the dogs wake me up to go out which is rare. I think it's a matter of putting up a front and pretending you can still function normally. At home I still take out the trash or cook dinner- a mother job is never done.... sigh. The hardest part is being nice and functioning at work. That also take a huge toll on our mental and physical energy level I've used Botox for about 8 years and my new doctor (a headache specialist) wants to try Aimovig. In the meantime, my Botox has worn off so the migraines are getting worse with hurricanes and summer t-storms. So I cycle thru Maxalt, Imitrex shots, excedrin, advil, ice packs, thermacare, and sleep. I am trying to exercise more - walking the dogs and some yoga videos at home. Fresh air always helps but I'll be glad when it cools down some. I hope you find something that works. It is an ongoing process. So much info and so many combos of preventive meds. Maybe you need to tinker with those? It's worth a try. Best of luck!
frosti Member
Many doctors do not understand migraines, even though it may be their specialty (Neurologist). I had one doctor tell me that I should just take some aspirin and stop complaining. He was filling in for my regular Neurologist at the time. This doctor would not refill my meds, would not tell me what to take with my current med as it was not breaking the cycle and I was on day 5 of a migraine. I hung up the phone exhausted and crying. I refused to talk with the doctor ever again via phone and refused his visit in the hospital where I ended up because of the migraine. My Neurologist understood as he too got migraines (although not as often). Really need a doctor that understands!
ggourgues Member
“Absolutely! Pain physically and mentally drains you.” My first doctor in college told me that. Though she was not specifically referring to migraine, it helps me understand why I feel physically and mentally drain dealing with migraine. Not only the pain does that but also all the planning, thinking, stategizing regarding migraine add to the drainage of energy. I read that unless the migraine specialist suffers from migraine him/herself they cannot understand the pain and struggle associated with migraine. I wholeheartedly agree.
1. blackethyl Member
 I agree. Very little compassion. I had one neurologist yell at me because the treatments weren't working when I came in crying in frustration.
2. Melissa Arnold Community Admin
 That's ridiculous, Blackethyl. I'm sorry that happened to you. Unfortunately we often hear similar stories from others. I wish I could give a lecture to medical students on how to treat people, lol. If this is a neurologist you see regularly (not a hospital doctor), don't be afraid to leave and look for someone else. You deserve to have a doctor who understands you! -Melissa, <a href='https://migraine.com' target='_blank'>migraine.com</a> team
susanmcmanus Member
Steve, Great article!! I have been on the same “struggle bus” lately! My abortives have been doing the same thing, either working, or not touching my migraine at all. (I will say that I have a few different triptans that I use on a rotational basis. Different types and forms such as pills and nose spray). Lately, I have felt so much more fatigued and so much more “blue” and practically downright depressed. This has never happened before. I feel that the wet winter I’m experiencing is not helping either. Just trying to keep my chin up and get through each day and I don’t work anymore! Migraine stole that from me. Hang in there and ask your doctor if you can try a different abortive. Your body might be getting too used to the one you keep taking.
shell Member
I deal with this too. Most of the time I can rely on my medicine but there are days it takes much longer to work or it doesn’t work at all. Some days I just can’t shake them.I wake up in the morning and I struggle to get ready for work waiting for the medicine to work. Then I am exhausted from the side effects of the medicine. Don’t want to change my preventative medicine cause it does work. The doctor is pushing antidepressants saying you have to control your stress. Yeh, right. Don’t want antidepressants . Maybe I need to try something new. I’m so tired I have to worry every minute of every day about getting a migraine and how to stay on schedule and stay away from things that cause one and you still end up with one breaking through. Ugghhh
1. blackethyl Member
 I hear you, feel the same. Why haven't researchers found a real cure, do they not fund them enough? There are so many of us.
cintrovert Member
I've been having migraine since I was twelve. So much more is known about it and the treatments are so much better than then. I, like you, have had to rethink my meds from time to time. I haven't been afraid to talk to my doctor about how thing are working or not working in a long time. If your doctor is not treating your concerns about your migraine and is not willing to work with you and the various treatmentsfor migraine, then I would seriously be looking for a new doctor. I also have problems with the exhaustion that happens. I nor my doc have found a good solution for that yet.
ndw6888 Member
Oh exhaustion, I feel you. Oh the utter life-suck! I’ve had daily chronic migraine for close to four years now. Top three things that get to me are the sensitivities to noise/touch, the mental fog, and the unbelievable exhaustion. I work full time. I’ve had to start being kinder to myself and accept that there are plenty of times I need to push through this unwelcome triad (let alone the pain), but there are equally as many times that I need to accept some limitations in my activity and seek rest. I’m finally getting to the point that I am not so angry and so overcome with the loss of a healthier, energy abundant life. That kindness and self-acceptance legitimately helps the actual intensity of the migraine. I still get whoppers that knock me off my butt more frenquently than I like, but anything that gives a boost to my quality of life is a grateful win. I hope you find a combo that makes life more bearable and enjoyable!
jjmcwil Member
Oh for sure! Some days I am not even sure what is worse. Days like today I am just trying to get through the work day. But then I have a 4 year old to take care of. I hate not being "there" for him. I hate that he is 4 years old and so "used" to my migraines that he will pat my hand and say "it's okay mom, it will get better". Then when I retreat from my room he says with a hug and a big smile, "mom do you feel much better"? It's heartbreaking.
jd0144 Member
Wow kudos to you your explination of what you go through is the same as me drs just want to medicat I been fighting the same fight but Iam Gona give this ajovi a try on the 18th of this month but at this point I just pray for a good day iam half the man I once was
sandyeeds Member
Steve, you have written my story. Those could be my words.....until I started taking Aimovig. I'm on the 140mg dose now (started at 70mg) and I am a new person. After 17 years of trying every off-label medication and alternative therapy on the market I was beyond frustrated and depressed - totally not like the "real Sandy". I took early retirement from IBM because of the migraines. Aimovig has given me my life back. I have energy; the migraines that do happen are "mini migraines"; and there are far fewer of them. I'm so happy now I fear I am driving my friends crazy with my level of "Wow, I can participate in life again" feeling. Plus, when they get a text from me they no longer worry that I am again cancelling out of plans we'd made (always with an understanding I might have to cancel). Also, zero side effects from Aimovig. Truly. I hope you get an opportunity to try the amazing medication.
gabriel67 Member
You have described my life also. I have dealt with severe migraines since 18. I'm now 68. After 50 years of this, I get frustrated by the categories the med professionals put me in. I've tried all the preventive meds like Topomax, Toporal, et.al. including Amitryptilene, and Botox. I currently take Relpax to stop one, but it not very effective anymore. Back to the neurologist.
st24b Member
To Steven Workman I understand where you are coming from. I have complex migraine disease every day. I have been to 2 neurologists...both of whom have declared there is nothing else out there for me. So, I'm on my own. Because of the last one, I had a TIA and spent 2 days in the hospital. The doctors said it was definitely not due to the migraine, but that I was having one of those episodes too. I was given antidepressants, which I cannot tolerate. I feel like I am going around in circles every day. Do You?
emwinn Member
Steve, I have been where you are. I won’t bore you with the details but please try Aimovig. Those shots have changed my life after 30 plus years of disabling migraines.
cellogirl Member
Don't be so quick to dismiss antidepressants. Some can actually help with migraines, as they raise the amount of serotonin in the brain, as low serotonin is thought to play a role in migraines. Antidepressants weren't right for me for a long list of reasons, but, I am glad I tried them because my doctors and I now know that low serotonin is not what's causing my migraines. This led my doctors and I to the conclusion that my migraines were due to inflammation, anxiety, and environmental triggers. Further testing also showed that I was deficient in iron, sodium, and potassium, so, I was told to increase my intake of those nutrients. Preventatively, I take Boswellia-Serrata extract (aka Indian Frankincense) for inflammation, and propranolol (beta blocker) to minimize the pain and pressure in my head, as well as help treat my anxiety. During a migraine, I drink Mountain Dew and Gatorade, as well as eating popsicles and taking cold showers. This works every time.
kalinda Member
I have the same experience Steve, and it is so frustrating. Doctors of any training, including migraine specialists do not seem to understand the full dynamic of migraine, at least not the ones I have seen in the past 5 years in California. My original neurologist got it, but I had to move because my migraines were so bad I was spending more time in hospital than at home and I still had one child at home to raise and I was trying to work. Anyways, I just wanted you to know that you are not alone, and I too, feel the frustration that my doctors cannot comprehend the level of exhaustion I feel from having intense migraines each day (with no appropriate abortive). I feel myself aging decades every year.
ld5townsend Member
I sympathize with that. My meds do and don't work too. I have depression and migraines. They are often comorbid. You can take short term antidepressants and get off of them. My depression is chronic due to brain chemicals off balance, so I will have to take that permanently. Don't fear talking to your doctor, and they are there to help.
harobed Member
Migraines for me are daily. This new medication called Aimovig, Ajovy are CGRP. Calcitonin gene related peptides are being givin out free to people with commercial insurance. But those of us on Medicare and limited budgets don't qualify. My first injection cost me over $360.00 dollars. Insurance paid the other half. My doctor keeps trying to get coverage for me. They say I'm approved. Then nothing happens. Both companies have approved then turned me down. It gets confusing and frustrating.
deedeevee1 Member
Yes they do. When I address this with my medical team I'm normally met with, change of diet or adding multi-vitamins. It's never addressed as a symptom or by product of migraine disease. Very unfortunate.
cobymeg Member
It's hopeless as far as I am concerned. I no longer talk to any medicos. Every possible treatment has failed (including Aimovig and cannabis). No pain medication works either. Like you I try to ignore it and I exercise like mad and compete in athletics (at 79) but really it is just damn hopeless.
purvi Member
Yes at times the medications don't seem to work and I have the added pressure from doctors to avoid the overdose of trusting. But that's the only thing that works. I have tried alternative medicine as well which does help with the frequency and intensity, but the demon is there every single day debilating my life.
purvi Member
Yes at times the medications don't seem to work and I have the added pressure from doctors to avoid the overdose of tryptans. But that's the only thing that works. I have tried alternative medicine as well which does help with the frequency and intensity, but the demon is there every single day debilating my life.
bookseller Member
Steve, A couple of things stood out in your article. Are you seeing a headache specialist? Not just a regular neurologist? It’s important, the specialist only treat headaches and are more up to date on treatments. Second, I’m currently prescribed 4 abortives that I can rotate or use based on the severity of the migraine. There are many out there, you don’t need to be limited to one. Depression often comes along w/ migraine, an antidepressant may help. The tired, drained feeling may also come from interrupted sleep. My sleep study showed many interruptions they surmise are caused by my pain. I am always tired and drained. The last thing is your reluctance to share your symptoms w/ your doc. If you aren’t comfortable having an open honest discussion w/ your doc, perhaps it’s time to find a new one. They can only help you w/ the problems they know about. If they won’t listen to you, they aren’t the right provider for you. The doctor works for you. If they aren’t meeting your needs, find someone who does. Good luck.
montanaday Member
Wow, you sound so much like me before I finally said enough and quit working Steven. Of course I was close to retirement anyway, so I realize it was easier for me than some. My migraines always seemed to come either around 4:00 a.m. or I'd wake with one. So besides dealing with a migraine I would worry about making work that day. Where I used to get to work quite early previously, I would drag in every day after staying in bed as long as possible and trying to will myself to get up after migraines hit. Eventually the yawning would start, and you don't know if it's the prodome to another migraine or if you're trying to recoup from unrestful sleep. I did all the sleep studies, etc. and they also put me on antidepressants. All they did was make me sleep longer, so I didn't have a migraine but I had absolutely no life. And, like you, I did not feel depressed, just physically drained from the constant cycle of migraine. The last five years I worked I would come straight home and right to bed because I could barely stay awake long enough to get through my work day. It was horrible. One day I said enough and filed for disability. Luckily it did come through, and although I still suffer, the amount of stress it relieved was incredible and I do have more of a life now. I feel for you, these migraines exhaust every aspect of your life. I wish you the best.
savta45 Member
Yes, very much so. I am not able to take abortive meds, due to my history of multiple blood clots. I am on Topiramate, an anti-seizure med, to try to minimize the frequency of them. The many meds & alternative therapies I’ve tried haven’t helped with my almost daily migraines, & I’m “sick & tired of being sick & tired.” I’m joking, but, not. Started Emgality 2 months ago, as Aimovig stopped working, like all the others that seemed to help have. Not much results so far. Trying to stay on it for a couple more months to give it a fair trial. In the meantime, everyday is a question mark of how severe the pain will be & what I’ll be able to do. So, yes, it’s depressing. I’m in the care of a psychiatric practitioner. Sometimes it helps. Best wishes to you.
migraineteach Member
I too am always exhausted. I am having trouble sleeping as well. I never feel good anymore. Suffer from chronic migraines with photo phobia, have been dealing with this for 5 years and keep trying new medication nothing works. Can't get disability because this is not recognized
1. staceyranderson Member
 Ive been on Aimovig awhile. My doctor just had me do two "load" doses 2 months in a row.its really helped. (Until today) Hoppe you find something helpful. Its truly hit or miss. Best of luck!
fraidycat Member
Hi I am new to sharing anything on the internet but I have reached my limit.I have had migraines since I was a kid in my stomach then in my late teens they were in my head and they were fairly regular but when I turned30 they became intractable chronic daily migraine I’m 54 now so I have read your treatments and how people are trying to deal with this totally life sucking unending pain that is a true constant I. My life.I have tried everything that is out there and allergic to a far amount of the recommended drugs .i live in canada so my treatment now consists of ivmagnesium and lidocaine Infusion every 3 weeks along with trigger point injections that start in my head all the way down my spine and shoulders and ribs.this is painful and last for about 4 days of a decrease in pain .i get this from my pain dr . My other treatment is injections of gravol and toradol with 2 narcotics codeine 30 mg x2 and morphine 20mgx2 at a time and I do this twice a day.i also take 100 mg imitrex 2xa week. I am waiting for the new drugs nurtec and umbrevly to come to canada so I can try them and you can take them daily.I have been totally disabled because of migraines and chronic pain
1. holdthatsound Member
 Very understood. At about the same age as you, I also get stomach migraines as well as migraine with and without aura usually daily, chronic intractable. Hard to tell when one ends and another begins. Low frequencies (building equipment like cement trucks, other trucks; military aircraft, people’s bass-boost music, etc.) all have me in a constant state of misery and sometimes to the point of falling down and dropping things at home, and when physically at work as well. Light and smells then add to triggers. With all you’ve gone through you’ve probably tried all I have and more. I can say that the past few years have been better than previous though. If you haven’t tried Natural Calm brand Magnesium Citrate (Amazon) it’s worth a try as part of your regime. Also instead of an NSAID I am using the clinically trialed Gliacin neuraceutical (<a href='https://www.gliacin.com' target='_blank' rel='noopener noreferrer ugc'>www.gliacin.com</a>). I’ve done this at the recommendation of my neurologist who wanted me off long-term strong NSAIDS. It’s been very helpful as part of the regime of prevention. Also taking one of the anti-CGRP shots each month. Still have to take acute rescues, especially near the end of the month. Some days when the farmers are working the tobacco fields here (the noisiest crop ever), the landscaping business next door is going and the homes are being built plus the highway construction only a few miles away I only want to crawl into somewhere deep and soundproof and scream and then be blissfully silent and hopefully painfree. Oh, then is when the military helicopters decide it’s time for hours of maneuvers.
2. katjolo Member
 I've tried Ubrelvy and it's nothing more than a more expensive Sumatritan (generic). I had high hopes also but it didn't work any better.
suzyg Member
Very exhausting and leads to depression. I’m trying very hard to self destructive, negative thoughts. No more apologies and self care all the way. I must say that I do feel disappointed that more of my friends don’t call to see how I am, especially after I’ve had to cancel something with them, or maybe they just don’t know what to say, I’m not sure... but for now, I have my family, and a few friends that are very understanding. I try to be grateful and reach out to others who are also having a difficult time, physically or otherwise.
1. Melissa Arnold Community Admin
 Hi again, Suzyg. I give you credit for working hard on challenging negative thoughts and taking care of yourself. It's definitely not easy! <3 I tend to assume the best in people, so maybe they believe -- as many people do -- that migraine is "just a bad headache" or something that only happens now and then. Maybe they don't realize how serious it is. And yes, it can be strange to check in on a friend who's not feeling well sometimes. I'm glad you have good people around you and are being a good friend to others. That's truly how we make the world a little better. Take care, Melissa, <a href='https://migraine.com' target='_blank'>migraine.com</a> team
blackethyl Member
Since being in Quarantine, I have noticed this milore, how absolutely fatigued I am both from original migraine and the med. It is also as you say, on the days meds don't work, so depressing that you are stuck with this lifelong disability. Even on good days, there's an underlying sense of dread. And doctors don't understand. It,'s always oh a new pill or another doctor, so exhausting.
1. Melissa Arnold Community Admin
 I hear you, Blackethyl. It seems like quarantine has had an effect on many people here. Your feelings are totally normal, especially when it's hard to find relief from migraine. If your depression and anxiety is making it hard for you to cope, I would suggest talking to a counselor ... it can feel SO good to vent to someone who can help you figure out ways to manage. Of course, we're here for you too. We definitely understand. Hang in there! -Melissa, <a href='https://migraine.com' target='_blank'>migraine.com</a> team
cellogirl Member
My migraines are very well-controlled, but not with traditional treatments. I tried several different preventative and abortive medications, which didn't really help much. So, I went to the Headache Clinic at the University of Washington Medical Center, and they worked with me to come up with a treatment plan that actually treated the root cause, which turned out to be multiple things. Now, I am on a beta blocker and nasal allergy spray, along with some herbal/nutritional supplements, and I feel SO MUCH BETTER!! I went from being miserable in bed half the month to maybe just one day, and the ones that break through are easy to treat at home with binaural beats, caffeine, electrolytes, water, and acetaminophen.
1. Melissa Arnold Community Admin
 Hey, CelloGirl! Thanks for sharing this. It's fantastic that you were able to get out to the clinic. I'd love to hear more about that experience -- maybe you can post about it in our Stories section? What ended up being the causes of your migraine? It's amazing when there's a true answer to the problem! Wishing you continued wellness, Melissa, <a href='https://migraine.com' target='_blank'>migraine.com</a> team
2. katjolo Member
 What are the herbal/nutritional supplements you take?
cellogirl Member
I understand that some people don't want to take antidepressants because of their association with mental illness. But, when a doctor suggests trying one, it doesn't mean that he/she thinks we are depressed. The term, "antidepressants" is a misnomer because these drugs can actually treat a variety of ailments that have absolutely nothing to do with mental illness, especially chronic pain. <a href='https://www.mayoclinic.org/pain-medications/art-20045647' target='_blank' rel='noopener noreferrer ugc'>https://www.mayoclinic.org/pain-medications/art-20045647</a>
military-wife71 Member
Yes, my migraines I have had for over 20 plus years. And I'm at the age that they are wearing on me physically and emotionally. I don't sleep do that doesn't help and I don't eat Because I'm so sick to my stomach and dizzy alot! I've had to take 6 month leave from my job because of my migraines
rfstein Member
Absolutely! I also experience silent migraines and find the next day I feel like I have a hangover typically as I would with a migraine that has severe pain
pricey1958 Member
Thank you you put into words what I could not. Drs. Do not understand... I’m in pain, I’m not Convulsing, or Depressed. The Quality of my life is disappearing.
1. military-wife71 Member
 Sometimes I wish the doctors could take my migraines for a week so maybe they could try to understand what most of us have gone through for years
2. willemijnkamerling Member
 I wish this on everyone around me who has judged me even once. Or has tried to give advice or so and so can do it, why can't you. Even just a day of my worst or a day of me pushing through to take care of my kids. Even those who have migraines now and then don't know what it feels like when they are chronic.. (not trying to be mean, just letting of steam?)
military-wife71 Member
I often times feel lazy because I'm so wiped out and exhausted from my migraines! I don't sleep or eat well with a migraine so of course that doesn't help the issue. I'm glad to know I'm not alone!
katjolo Member
Yes.. They definitely leave me exhausted and mentally drained. On the days my migraine meds don't work it's even worse. Even if they do help to alleviate some of the pain, I still feel like a zombie, unable to think and preform physically. My meds aren't working as well either. I have to take more of them to get any relief which starts a rebound effect. Both Botox and Emgality worked for a short time then their effectiveness lessened as well. Hopefully they will soon discover something the works and keeps working.
dreilingtx Member
I also feel horrible every morning of my life now. Most days I wake up around 3 am with a migraine. My scalp starts hurting terribly. I rub alcohol on the scalp area. It’s very painful to touch it but after about 15-20 minutes, sometimes it goes away, it’s like a minor miracle I discovered this. It’s very depressing to wake up every morning feeling bad and defeated. I feel for this writer, you are not alone, though it helps little!
1. Melissa Arnold Community Admin
 Hi, dreilingtx. It sounds like you're really going through a rough time. Having a painful scalp is a pretty common topic around here -- it's called allodynia. This article about it has gotten a lot of buzz and I thought you might be interested in reading through the comments for other experiences: <a href='https://migraine.com/living-migraine/pain-allodynia' target='_blank'>https://migraine.com/living-migraine/pain-allodynia/</a> Thanks for sharing about the alcohol. It's an interesting strategy -- I imagine it would feel cooling. Have you seen any excessive drying of your skin from doing this? I'm glad it helps a bit. -Melissa, <a href='https://migraine.com' target='_blank'>migraine.com</a> team
rodo61 Member
Hello I'm new at this . I had no idea how ocular migraines effected my life UntiI I became Physically and emotionally exhausted. Come to the point that I can't take it anymore. On top of the migraines and blurry vision. I have arthritis on both knees. At the age 61 and still working. Im having a really bad time. Im so greatful that I can finally tell someone. How I feel and knowing that Im not alone. Because, I know now someone understands. Thank you.
1. Melissa Arnold Community Admin
 Hi, rodo61. I'm so glad that you found us. It's obvious that you have been through a lot and yes, it's true that you are never alone, especially not here. Thank YOU for trusting us and for being open here. We're here for you! Sending hugs your way. -Melissa, <a href='https://migraine.com' target='_blank'>migraine.com</a> team
seleqm Member
I have been on Topomax and Imitrex for years. I am 53 and perimenopausal. Just started taking Metoprolol and seems to be helping. I have many food triggers and am only truly migraine free for long periods of time if I eat foods on the Elimination Diet list only. I think I have an autoimmune issue or something digestive that needs to be addressed. Anyone else?
1. willemijnkamerling Member
 Metoprolol helps me too, I've been taking it for 3 years. My abortive went from 17 a month to 3-6 a month which was fantastic. But now I'm realising I've been so tired all that time. I'm now at the point where I doze of on the coach even if I've hardly done anything that day. It feels like chronic fatigue syndrome. If you are feeling fatigue more that usual after the first couple of months it could be the Metoprolol. My sister took propanolol for years and had almost no side effects. I hope they work for you in the long run 
2. bower1k Member
 Hello Jojo! Yes, I have those exact issues. I had the blood allergy testing done (not where they prick your skin, but actually take blood and do the testing with that), and found SO MANY foods that I am sensitive to. I am migraine free as long as I stay on that diet. However, I am still having crappy days, minor headaches, depression and just basically don't give a crap. I am on an anti-depressant, and natural hormones, but doesn't seem to be working. I'm so, so tired of all of this.
terriergal Member
Yes yes yes. Oh please do tell your doctor. Especially if you have no one else to support you / the family you’ve got to get this fixed. You may have degenerating discs that need addressing, or something. Poor you. I’m in the process of this whole mess right now. Only I’ve been a stay at home mom (children now grown) so being useless only fills me with guilt and depression. But I would like to at least be able to work part time. I did find out that migraines can also be connected to brain lesions much like MS. My neurologist was suspecting MS for a few years but just yesterday she said she’s now suspecting it is just a migraine disorder with possible brain lesion involvement since there have been no changes in several years. We are focusing on preventative now and you can still use your rescue meds with those. Also be very sure that your rescue meds are not getting warm where you have them stored. They will not work. My heart goes out to you.
sanibelsusan Member
Aloha, Yes it does! I have suffered Chronic Migraines since age 16, now 57. Now very worried about new Migraines that are Ocular. I currently take Sumatriptan, (for years). Anyone else have advise? Take care, Sanibelsusan10
1. Nancy Harris Bonk Moderator
 Hi <inline-mention user-id="3786990" username="sanibelsusan"/> , Thank you for sharing that with us. I hear how concerned you are about this new symptom. When we have new and/or different symptoms, it's important to reach out to the doctor and let him/her know what's going on so they can make sure everything checks out okay. Please keep me posted, Nancy Harris Bonk, Patient Advocate/Moderator
2. sanibelsusan Member
 Thank you Nancy. I appreciate the quick reply and the email to let me know you replied!!! Great Site! I am so confused over this. It is ruining my quality of life. Like so many I just want relief. Take care all!! sanibelsusan10
wendyvernon Member
I have convinced myself that I have (chronic fatigue syndrome/myalgic encephalitis) cfs/ME as a result of chronic migraine. I have not been able to work for about 5 years now as somedays I can barely make it to the couch. Unfortunately, my son has been having migraines and now is having the overwhelming fatigue similar to the symptoms that i have, so im wondering if it is just how our bodies/brains handle migraine. Either way, it is horrifying to watch my 21 year old child experience this level of dysfunction.
camk Member
Hi Steven, I had the same problem. It came to to point where i was finding it difficult to operate. I had was getting more confused, slow and my memory was terrible. I went to the doctors and she was convinced that is was chronic fatigue/ME. Im not convinced but after a couple of visited i accepted the antidepressants as i was fast running out of options. They have helped but i believe they are only masking a deeper issue. Having spoken to a cranial osteopath i was advised that she has seen lots of patients who have numerous undiagnosed intolerances that once the body finally cant take anymore express themselves with numerous symptoms including fatigue and migraines. I have allergy testing this coming Tuesday and I'm hoping that they find something. I will update you as to the results and If their advice has helped. With regards to the antidepressants if you are really struggling like i was (in bed for days at a time and struggling to Operate on the most basic levels), then i would most definitely try them. They have helped and the migraines have become slightly less intense but i put this down to having the energy and strength to recover slightly better having taken them. I hope this helps you. All the best Cameron
jrmartin Member
Yes they do Drain all of the Energy out of me & sometimes the Meds Just don't want to work & most times they Do!!! Good Luck with your Meds & find a Migraine Specialist!!! Good Luck !!! Semper Fidelis!!!
wirr Member
Before it all really took off for me, I was an amateur endurance athlete. Went to the university in the morning, helped out in a small computer workshop at noon and did a complete renovation of commercial premises with a friend in the late afternoon or evening. A completely normal day. The worse the disease got, the less sport I did. That was just the beginning. Over the years, almost all hobbies have fallen victim to the disease. When I was able to tell my whole story to a migraine specialist in 2018, he was amazed that I hadn't been retired since the late 90s. I've always known over the years that I can't go on because I've only been sleeping and torturing myself. Looking back on it today, I have no idea how I got through it all.
oildoc Member
 Steven Workman: I am always fighting fatigue...ALWAYS. I have chronic migraines, yes, a migraine of some intensity everyday. I get bad 10's or red lights your choice, every three to four days. I cannot take T3 every time an attack comes up, bad hi cups and constipation are an end result of T3's (acetaminophen and codeine, 3 grains) this seems to hold true of all opioids. This is terrible as I really need something strong to work. Unfortunately, confusion is another by-product. I tell you there are days I want to go play in the traffic. I am coming unglued. Yes, I have a neurologist who is in there trying...I think. Now, there are is just too many months between visits and I think I may be falling between the cracks as she is likely getting frustrated with my medical response. Chronic migraines suck (to use a common street term so my kids tell me). I am so done with these life sucking, joy sucking, pain filled hard center candies when you are expecting soft centers. Hope you understand the metaphor. Good luck Steven. Dr. Gary Reid 
1. Nancy Harris Bonk Moderator
 <inline-mention username="oildoc" user-id="3850291"/> Thank you for sharing your experience with us. We get it - migraine does indeed suck! I do wonder if it's time to reach out to a doctor who is a true expert in treating migraine and headache. These doctors are different from general neurologists as they are certified in headache medicine, all neurologists are not. General neurologists may be fine doctors but have a hard time being experts in one area because they treat many conditions such as stroke, epilepsy, multiple sclerosis, Parkinson's and more. A true migraine/headache disease doctor treats migraine and headache all day, every day. Here is more information on how these doctors are different and how to find one; <a href='https://migraine.com/blog/really-find-headache-specialist' target='_blank'>https://migraine.com/blog/really-find-headache-specialist/</a> <a href='https://migraine.com/living-migraine/neurologist-vs-specialist' target='_blank'>https://migraine.com/living-migraine/neurologist-vs-specialist</a> <a href='https://migraine.com/living-migraine/change-thoughts-new-care' target='_blank'>https://migraine.com/living-migraine/change-thoughts-new-care</a>. I've found these doctors have made a huge impact in my care. Let me know what you think and I'm wishing you a low pain day, Nancy Harris Bonk, Patient Leader/Moderator <a href='https://migraine.com' target='_blank'>Migraine.com</a> Team
wappaw Member
Sitting here, pushing my palm into my right eye, I agree fully that migraines drain/ exhaust me. I told my wife the other day that I didn’t want to say anything, but I had been migraine free for two months. That had never happened in 48 years. Well going on vacation took care of that record. It has now been six straight days with a nagging migraine. Medication, sumatriptan, pushes it away but unfortunately it keeps coming back. Sleep is sporadic as pain and stuffed sinuses make breathing difficult, even using a CPAP. It feels as if a bottle brush is jammed into my nose up into my sinus. Muscles in my neck and back are pulling tight, making it very hard to relax. Just can’t get comfortable. So exhausting…
1. Melissa Arnold Community Admin
 <inline-mention username="wappaw" user-id="3905284"/> Ugh, how miserable! My heart goes out to you. Routine is such a critical part of staying well for many people with migraine, and any change to your schedule, sleep pattern, activity level, etc etc can really set things off. 🙁 We have had some good conversations here in the past about weighing the worth of doing the things we want to do with the chances of facing an attack later. You are certainly not alone. Don't be afraid to reach out to your doctor -- they may be able to make some adjustments to help you break this attack. At the very least, I hope you still had an enjoyable vacation and that you're feeling better soon. -Melissa, <a href='https://migraine.com' target='_blank'>migraine.com</a> team
wappaw Member
I am fully aware of any change to my routine and the potential migraine triggers. Vacations have always been a challenge. I will say that the Botox, AIMOVIG, and Summatriptan have made great changes in my life in general. 
1. Nancy Harris Bonk Moderator
 <inline-mention username="wappaw" user-id="3905284"/> Good to hear the treatment plan you are on is making a positive impact on your life. Thank you for being part of our community and I wish you a low pain day, Nancy Harris Bonk, Patient Leader/Moderator <a href='https://migraine.com' target='_blank'>Migraine.com</a> Team