Has anyone here started taking the newly approved Aimovig?

It is a monthly injection and so far very little is known about any potential adverse reactions. I’m not seeing any discussions about Aimovig (as yet, in this community) and that worries me a little bit.


Community Answers
  • eastcoasta
    2 months ago

    I am happy to hear Aimovig is helping others. I did the injection 3 days ago and ever since have been extremely dizzy,nauseous, and my head will not stop hurting! I have taking my zomig and 4 excedrin today and cannot get my head to stop. I have also read others having these side effects in drugs.com. I have been in bed every day as I am unable to function. I feel like I have the flu. Does anyone know know how to counteract this drug or a way to get it out of your system faster? I am so depressed from this and going crazy.

  • hkh7t8
    3 days ago

    Hello. I took my first injection about a week and a half ago. Two weeks in now, and my Migraines have subsided about half. This week I have been irritable, cold, and have flu systems like a head fog. Feels like something is not right in my system. My ears have been ringing for a few days now, which causes me to get a bit anxious. I also have been very tired, and not much of an appetite. I do have a little cold, but have never felt this out of whack. I also had a flu shot for this year already. I started to think of any new meds I started taking, and that led me to the Migraine.com forum to see what others may be experiencing. I am not sure if I want to repeat this injection next month. I will need to watch myself closely the couple of weeks.
    I am glad now that others are posting results. It doesn’t seem there are enough side effects listed for the med.
    I hope you feel better. Hang in there

  • eastcoasta
    2 months ago

    Oh yeah I forgot to mention also have insomnia. Have not been able to sleep at all since the injection and constipation as well.

  • runnergirl
    2 months ago

    I had my first 70 mg Aimovig dose about three weeks ago. I had a few headaches the first few days after (I get about 12-18/month)… but a week, have been 100% headache free (14 days!). To people who don’t suffer from migraine, that probably sounds like nothing, but when living with chronic pain, this is AH-MAZING! I have freedom from my triptan! I am just shy of a week from dose #2 (waiting for me in my refrigerator!). My neurologist sent in the prescription and my pharmacy filled two months. Took them a few days to get it, but didn’t seem like an issue. We have already hit our annual deductible, so there was NO COST to me. This medication is a godsend and I am so thankful for the breakthrough in modern medicine. I hope it can help others like it’s helping me!

  • Adie
    2 months ago

    I wish Aimovig had included more 60 + aged people in their trials. I am 71. Another thing I read in their packet was that they did not include patients with many types of heart disease. No wonder my doctor could find no cardiovascular related side effects.
    I have been approved for the free trial, and today got a letter from Tricare saying they have approved me for a period of 4 months…and then will re-evaluate.

    All good, except a bit nervous about trying at my age. I leave the country shortly for several weeks, so cannot start until I return November 1.

    My doctor ordered the 140 ml dose which surprised me as most members here seem to be on 70ml. I am going to ask her to lower the dose because of my age, and my high sensitivity to meds.

    Fifteen headaches a month starting at age 27. Daily headaches for the past 20 years. I can’t take triptans and nothing else helps much. Currently on Propranonol, Botox and Fioricet. Also get some relief from Cefaly and MigraineX ear plugs. I am using Cefaly at the moment after an all day migraine that got worse tonight. The daily max # of Fioricet didn’t help, but Cefaly is doing a great job this time. The headache pain is gone and just the weird Cefaly discomfort remains.

    Are there any older folks here who have tried Aimovig…and at what dose? Also, any others sensitive to stimulants, steroids, vasoconstrictors etc., who have tried Aimovig, and what was your experience?

  • cpjarriel
    2 months ago

    I have been fortunate to receive my first two free trial months. As someone who has tried everything, blood pressure meds, anti seizure meds, relpax – which works to relieve a migraine once a migraine hits – and even had the Botox injections, which were miserable for me and my headaches were worse right away. I understood it would take two Botox treatments to see if there were any results. I just couldn’t bring myself to go through that again. So I was excited when a relative texted me about this new shot. And I asked my neurologist about it. And long story short, I will be taking my third shot this weekend.
    So as a person who has head a headache EVERY day for I don’t know how long, and I work every day, it was somewhat of a struggle. Although I didn’t realize that until I used Aimovig. The first month there was some relief. I’m not sure how many less but definitely less. This month is definitely over 50 percent less. I’d almost say 80% less. So now I’m more clearheaded and don’t feel like it’s a constant struggle to get through daily life with the least amount of pain as possible.
    I’m waiting to see if my insurance pays any part so I don’t know the actual price yet.
    I do know that the relief it provides for me is priceless. I found a coupon online that says pay no more than $5, with an asterisk, of course.
    Oh, the side effect that it says and that it causes is constipation. But I can work through that. Hopefully the relief will continue!

  • pierotti
    3 months ago

    So far so good …….I have suffered from Migraines since my early 20’s (I’m 52) last year I took 195 Maxalt plus Torodol. My husband I have 3 companies and don’t have time for downtime, hence the large amounts of meds. I have tried numerous preventive meds (beta blockers, topomax, Botox etc…) therapies (accu, homeopath, osteopath, chiro, herbalist) purchased Dr Ho, so called migraine vitamins, essential oils (disaster because of the scents) even tried going gluten free, dairy free, had my silver fillings removed …. no relief. I live in Canada, my Neurolgist was very optimistic about AIMOVIG so I made an appointment in Michigan at MHNI (has just been approved in Canada but release date not known- I called Novartis last week) and paid out of pocket, had my first dose on August 3rd and have only taken 2 MAXALT on August 5th,6th – I have had 3 other times where I felt like a migraine was coming, I got up from my desk, made a cappuccino and chilled and no need for a Maxalt (one day I had just finished playing 9 holes of golf, and typically the heat and humidity would send me into cluster migraine state). I am looking forward to my next injection and getting my life back and always worrying about planning social events and having a migraine.
    I will say that on the day of my first injection, my husband and I went out for dinner as it was our anniversary, I ordered a fruity girly martini and sipped about half an inch and said to my hubby I feel like I’ve had 4 drinks and was a bit dizzy ! He laughed and pushed more bread my way, I’ve never been a big drinker (2 drinks and I’m drunk) so now I know not to drink after, I am more than please with results !

  • Holly Baddour moderator
    3 months ago

    Thank you so much for chiming in with what sounds like quite the success story. We will keep our fingers crossed for you that this corner you have turned will continue for you. It sounds like quite a new lease on life after a long and challenging journey. I love the descriptions you provided- from going gluten free to enjoying extra bread at your anniversary dinner! It’s those little things that we migraineurs appreciate like few others! So happy for you! Keep in touch.

  • nana55
    4 months ago

    Hello.. I am on month 2 of Aimovig. The first month I only saw a small improvement in my daily migraines. This month I have had much better results!! I can’t say I have been headache free yet ( I have had a daily headache for over 2 years) But I can say that I am feeling much better than I have in 2 years! I am functional as a person!! My pain is tolerable and I am out and about and not hiding in my dark room. . I call that a success!! And I am hoping it gets even better! !!

  • Joanna Bodner moderator
    4 months ago

    This is fantastic to hear! It can take up to 60 days to know how you might be responding to a treatment, but I am so happy to hear that you have begun to feel a “bit” better! I do hope you can keep us posted! Also, we do have a forum page dedicated to this treatment if you’d like to share your experience there. You can find it here. – ttps://migraine.com/topic/tried-newly-approved-aimovig-share-experience/ Good luck & thanks so much for sharing. -Joanna (Migraine.com Team)

  • BSF author
    5 months ago

    Hi Nancy, for some reason I am only just seeing your reply. Thank you for the links!

  • BSF author
    5 months ago

    @rikntracy, that is remarkable! I’m so happy for you. To hear that you have had a chronic migraine brain for 30y and you have responded so well to the initial injection is blowing my mind. I have so many questions about this new drug.

    I’m nervous about taking it because I have a latex allergy. And I’m wondering if there’s any contraindication for taking Aimovig with other drugs, like Benedryl or Tylenol. Plus a lot of questions about the long range effects of this medication (that have not been answered).

    But I’m just taking the next indicated step at this point. Waiting for the pharmacy call to let me know the Aimovig is ready to be picked up… I’m so worn down by migraine pain. It would be a miracle to experience a string of days (or weeks) migraine free consecutively!

    I will be eagerly watching for your progress reports @rikntracy!

  • 5 months ago

    Thanks! Please let me know how you do :).

  • 5 months ago

    Hi Blythe,

    I started taking it 3 weeks ago and had one migraine the first week and then none. I have had chronic migraines for 30 years. The only side effect was an achy arm for a couple of hours, but I’ll take that!

    I’m getting used to being completely functional, something I never even considered…..I mean, it’s no problem, but as an adult it’s new to me, to not be in bed in agony at some point or points in the week.

    I’m very happy and I have to admit I’m scared that it won’t last, but so far it’s changed my life. I hope it does the same for you.

  • Nancy Harris Bonk moderator
    5 months ago

    Hi Blythe,

    Thank you for your question. I haven’t taken Aimovig, but do know a number of people who are using it. You can find more information on this medication here; https://migraine.com/?s=Aimovig. We also have information on this CGRP antibody in this link:https://migraine.com/living-migraine/aimovig-cost/.

    I hope this helps. Please let us know if you’ll be trying this and how you make out.

    Nancy

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