Help! What are your tips for finding a good migraine specialist?

Did you know not all neurologists are headache specialists and that not all migraine & headache specialists are neurologists? Read more here about why we ask about your doctor.

Most importantly, please share your tips below in the comments for fellow community members looking for a board-certified headache & migraine specialist! If you haven’t found a good one, what challenges have you faced?

 


Community Answers
  • Elfreda
    4 days ago

    I have no support. I was told my Dr is the best. But,all this technology and nobody can help. I noticed the older I get the more migraine attacks I get, some 3 times a day for a month. I can be asleep at 3 in morning,or waking up , I have not eaten and get one. Today 11/17 ,I was doing my Christmas decorations and had not eaten yet,got one. Tuesday 11/12 I got one. I am subject to get one,as soon as I notice I can’t see well. Since age 12 these attacks been happening. Now as a older woman,they come to frequently. Anybody else having chronic constant migraine attacks.

  • winnie
    3 days ago

    Hi Elfreda,

    I can totally relate! I have had horrendous migraines since I was 5. I’ve had typical triggers such as weather, perfume, stress and high blood pressure causing an attack one or two times a week. Lately, however, I’ve been having constant, chronic headaches. I also felt that I didn’t get the support I needed at the doctor.
    I know you mentioned that you don’t necessarily eat before getting one, so what I’m about to say may not be relevant but I just felt compelled to reach out just in case. Recently I have discovered that Sunflower seed oil is a huge trigger for me. I never knew how many food items have it in the ingredients. I would eat a certain muffin or bisquit and get a migraine, but not make a connection. After checking ingredients I noticed that the common factor in all these items is the sunflower oil, often in a huge percentage. (Pineapple is also a massive trigger for me.) I’ve started avoiding foods with sunflower oil and have noticed some improvement, but it’s in the early stages of my discovery. The one drug that tends to help a migraine for me is RELPAX but lately I’ve had to take too many which I’d prefer to avoid.
    I feel your pain, both literally and emotionally. The past many months have left me housebound on many days. Unless someone is a migraine sufferer, they just don’t understand. I wish you all the best in finding a solution.

  • Codybone
    5 days ago

    You want to find a Dr that does not believe in giving medication all the time. I have a Dr that understands what I am feeling and tries to work with me. The Dr I had before just wanted to keep me on a lot of medication and it was making me worse not better. Stay away from Dr’s like that, they do more harm than good.

  • cydyth
    7 days ago

    Ask a MD who knows you for a referral to a neuro who specializes in migraines. since it can take awhile to get an appt, ask your MD to order a brain MRI, any relevant blood tests, etc, and have them sent to the neuro before your appt. you can also research their referral online.

  • Trtlegrl27
    1 week ago

    Search foundations like the American Migraine Association for headache specialists. When you find a Dr in your area google them and read their reviews. Make sure that those reviews focus on migraine not just neurology.
    Call and ask to talk to the nurse before scheduling an appointment. And when you do meet the migraine specialist if you’re not happy, move on.
    Either way leave a review so that others can make educated decisions too.

  • Dawn RN
    1 week ago

    Get references…from fellow Migraine sufferers online, in your community, from your current Neurologist.
    Look on the American Headache Society webpage for Board Certified Headache Specialists.

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