Adding My Postdrome Experience
Last updated: April 2022
My migraines started when I was 16. My first one lasted a week and all I did was sleep, moan, and sleep some more.
Diagnosis and treatment
At the age of about 25, I realized I needed help for my “sick” headaches, and I was diagnosed with migraine. At the time the meds they had available I couldn’t take because the treatment was worse than the illness. I was allergic to them all.
The only thing that worked (when it worked), was a Demerol shot or two (and not always). But then I became aware of how awful I felt for a couple of days after. I sludged and trudged through my days. I had two small children and still had everything to do, even though my body said “nope." I couldn’t plan or think. My body felt like it was run over and run through a wringer. As I got older and my kids grew up and moved out, I still worked but the postdrome was worse in a way because I was now older.
My life now
Currently I’m on Ubrelvy which works about 90% of the time, but the postdrome is just as big of issue. I had a migraine two weeks ago that resolved in six hours but afterward, I was wiped out. Even though I slept all night, when the alarm went off, I stumbled out of bed, and immediately my body said, “this isn’t happening, nope" so I called off my shift.
My supervisor knows I have been diagnosed by a neurologist with migraines so my employer is okay with me calling off, but I’m discouraged with the fact I can’t just be “done” with a migraine once it’s gone. I’m 63 now and I don’t foresee this changing.
In the past year, has insurance made it difficult to get your migraine treatment?