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Migraine and depersonalization

I experienced my first migraine attack when I was in 4th grade. I remember not understanding what was happening to me. For a young child it was one of the most frightening things I had experienced. One second everything was fine and the next I couldn’t see half of my friend’s face. It was just a blank swirling blind spot.

Anyway long story short I’m now in 10th grade and I still experience them frequently. I joined this site because well, I was feeling awfully alone. About a year ago (maybe less) I started experiencing this weird feeling like I was in a video game and that nothing made sense. I didn’t know what it was and it still scares me honestly. One of my friends has had mental issues for a long time now and her therapist diagnosed her with depersonalization disorder.

At first I was like wow that sounds scary. So, naturally, I looked it up. What caught my attention was that it seemed that it fit my symptoms! Though I never really told her because I didn’t want to seem like one of those people that hear about other peoples diseases and then try to say the have the same thing for attention. What’s even crazier is that another one of my friends was also diagnose with it! Now, this is a rare thing because usually 1 out of 3 people get it and well here we are with 3 out of 3. I still haven’t really said anything because if I start to question them about it or even kind of mention the Symptoms I have they freak out!

But I was online today and I found this website. On one of the articles it was talking about mental diseases usually linked with migraines. So I looked up depersonalization with migraines and found tons of people who have experienced the same thing I have! It honestly helped a lot. I feel less alone. Sometimes I don’t know what to do because I can’t talk to my two best friends about what’s going on in my life because I’m too scared with what their reaction might be. I’m considering getting a therapist but I’m not sure about it.

I’m just glad I found this site and can’t wait to read other peoples stories and experiences! Living with migraines and what I’m pretty sure is depersonalization is hard. I miss so many days of school because I’m stuck in my room all day crying with the lights off and a ice pack on my head. My grades slip a lot and it takes all of my energy to get them back up before the end of the quarter. I’m barley scraping by and it sucks. In good on credits for now thank goodness. But it’s hard because none of my teachers even try to understand. One of my teachers said “wow, these migraines must really bring you to your knees if you need to miss this much school” in a condescending tone. It definitely hit me hard because she’s one of my favorite teachers too. Well, that’s my story so far.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Katie M. Golden moderator
    5 years ago

    I’m so sorry for what you’re going through. That’s very stressful for someone your age. From what I’ve read, depersonalization disorder doesn’t always last forever. If you work with a therapist, you can probably get to the root of it and be able to manage it. So I encourage you to see someone about it.

    It must be hard to feel like you can’t talk to your friends about it. But I hope you are at least talking to your parents.

    It is also possible that some of the depersonalization symptoms you are experiencing are related to your Migraines. There is something called Alice in Wonderland syndrome.
    “It’s rare form of Migraine aura in which the distinctive symptom is a type of metamorphosia, a distortion of body image and perspective, which Migraineurs know, while it’s occurring is not real. “Alice in Wonderland” syndrome can occur at any age, but it is more commonly experienced by children.”
    “Alice in wonderland Syndrome is a specific type of aura in which the Migraineur has an altered sense of self or the outside world. They may feel larger or smaller than normal. They may feel a sense that their surroundings have changed – hallways may become longer, the ground may seem too close. Time may feel altered. Distortions or metamorphosis is common — the Migraineur senses the perceived change as it occurs — a hand grows, a foot shrinks. The ground may feel spongy instead of solid.”

    Of course, I’m not a doctor and can’t diagnose that you have you are experiencing Alice in Wonderland. I suggest that you talk to a therapist and as well talk to a neurologist or Headache Specialist about your Migraines.
    Let me know if you have any questions and thanks for sharing your story!

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