Is this my life now???!!!
Last updated: October 2022
Since the age of 12 years old, I have had severe migraines. I remember just crying so much from the pain (it only made it worse) and my mom feeling helpless not knowing how to help me. I'm the youngest of 6 children and no one else even suffers from headaches. I grew up with a single Latina mom who was not educated in this country or much in her own.
She took me to see my general doctor and they did CT scans with no avail. Just told me mom to give me over the counter headache meds that did not help. When I was old enough and had my own career and insurance, I started visiting several neurologist that also did CT scans of my brain and tried several cocktails of meds. The best and not so funny was a neurologist telling me to focus on a flower when I have a migraine attack come on and that should relieve my episode.
To make a long story short, in 2008 I thought I was having a heart attack at 43 years old and went to the ER. After many test and 3 days later, the cardiologist said that it was inclusive and I had a Mini Stroke. This happened again in 2012 and the same was diagnosed at the ER.
It wasn't until March 9, 2015 the day after having a great time at the NASCAR races, I woke up paralyzed on my right side with stroke like systems again. The first thing out of my mouth was "NOT AGAIN." This time I did not go to the ER knowing what was going to be done and said again.
My general doctor said I had Bells Palsy and referred me to a neurologist who was horrible help and did not believe me. Prescribed a high dosage of Topamax that made me feel and act very aggressive. I asked to get a second opinion and went to see a headache specialist.
He finally diagnosed me with severe migraines and Hemiplegic Migraines. I have been actively working with him for the past 2 years and we still can't get it under control. Having severe migraines all the time and a base headache every day of my life was miserable enough. Now let's add on paralysis of my entire right side, my ability to think, communicate and comprehend is shot. I stare at people and hear words coming out of their mouths but can't process what is being said to me.
My life for the past 2 years has been pretty miserable. I try and function the best I can, I'm a very positive person overall, but I have days that are so bad I feel like that 12 year old girl again crying at something I can't understand why this is happening to me. Here I am almost 40 years later still suffering from severe migraines all the time and let's add paralysis in the picture. Not a pretty sight at all!!! I look and walk like "Quazy Moto."
Is there anyone out there that can give me some new insight on how to treat Migraines and Hemiplegic Migraines? I have tried everything there is with meds, natural supplements, Botox, acupuncture, cupping and some Magnetic instrument that send pulse signals to my brain with no success. I'm just at my wits end!!! I just pray and hope that one day I can have some quality of life back. I can't imagine living like this for who knows how many more years of my life. Sincerely, optimistic, hopeful and grateful
Have others downplayed your migraine pain?