Light at the end of the tunnel?
Since I found this site, it has been the source of so much comfort for me. Knowing finally that I am not alone, that I am worth loving and being taken care of even when I cannot be the caretaker (from reading about those that tell YOU the same, in words or deeds).
So you are one of the groups I most want to share my current adventure with. You see, I had surgery last week. The surgeon did a greater occipital nerve release bilaterally. He cut away some of the tissue putting pressure on the nerve, but did not be damage the nerve itself.
It is early yet- I still have 15 staples in my head and occasional breakthrough bleeding- but I also had 3 days without a migraine last week!
We may well end up doing another round to release the lesser occipital nerves and/or the temple areas, but my initial impression is that this may well have worked!
I know how hopeless the unending agony can be. I have teetered at the brink far too often, for far too long. I had nothing except the oblivion of narcotics to assist- my migraine is intractable and essentially untreatable. Triptans, ergotamines, acupuncture, massagebiofeedback- the list of failures is huge.
But maybe, just maybe, there is now something in the "win" column. And a big one- 30% or so of patients undergoing this procedure have complete resolution of symptoms and still are migraine free or very close 5 years later.
Thank you for being there for me when I needed to know I am not alone not a mistake. Your stories and hope pulled out me through. I hope this give hope to someone out there, and allows me to return the favor!
When it comes to planning vacations or other events where travel is required, how much does migraine factor into your decision-making?