Miserable!

Hi I’m Shona I’m 39 and I’m new here. I live in Scotland but have been enjoying reading your stories. Your site seems more helpful than the ones I’ve been looking at.

Anyway I have suffered migraine with and without aura for over 8 years now. The first time was a Saturday the most excruciating pain sickness and dizziness this lasted 2 days and on the Monday I was pain free but exhausted. This happened again the next 2 weekends so I went to the doctors before it happened again thinking I was going crazy however he told me it was a migraine due to the release of stress my body slowing down. He prescribed sumatriptan and again Saturday came and so did a migraine the sumatriptan worked but the migraine came back so I had to go on stronger dose. I was going through a stressful time at that point.

Eventually the migraines became more frequent and I found more triggers. Spicy food, bright glare, perfume air, fresheners, car headlights, torches, periods, many things. I was then put on amitriptyline then pizotifen, propranol, atenolol and now topirimate which is the best ever 125mg twice daily the others all had bad side effects and didn’t help my migraines at all. I’ve been on topirimate for 4 years now and it dramatically reduced the severity of my attacks until lately I’ve had an ongoing migraine for almost 3 weeks now it’s not a debilitating one some days are worse than others but I can get out of bed most days. My doctor has signed me off work. I’m on week 2 out of 3 but I’m still suffering. She referred me to a neurologist for the first time. His words were it’s a migraine I’m sorry I don’t have a magic pill to give you I know it’s miserable but it will pass. So yes I’m feeling pretty miserable at the moment!  The worst thing is my migraines have changed I now get numbness in my left side and blindness in my left eye.

Anyway I’m sorry for moaning! I just wanted to let it out! I’ve also passed on my migraine gene it seems to 2 of my 3 teenage boys so far let’s hope theirs are “hormonal” and they will outgrow them! It’s good to know that there are people out there who understand what we are going through though. And it’s good to read others experiences. No matter what though.. There’s always someone worse off than yourself x

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