Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Misunderstandings Effect Living Situation

parmes's avatar image

By parmes

1 min read

Hello. I'm posting because this is the only place I feel like there might be someone who understands.

Invisible pain

I'm exhausted with having to tell people I'm in pain. I live with my husband and his parents, and things are coming to a head with them because of my illness.

Constantly misunderstood

Apparently, because I'm someone who pushes through and doesn't lock myself in my room every time I'm in pain, my pain doesn't exist. I couldn't possibly be having a "real" migraine because I was dancing earlier (to forget/distract from my pain). I'm just emotionally manipulating my husband by telling him my actual pain status.

By providing your email address, you are agreeing to our Privacy Policy and Terms of Use.

Looking for advice

I don't know what to do, I have absolutely no control over the situation I live in. No job, can barely eat properly, and also have seizures, autism, and fibromyalgia (which apparently also doesn't exist in general). So I find it extremely difficult to be employed for more than a month before everything flares up again. I'd like to apply for disability but I have no idea how to get all of my medical records. I'm hitting a wall.

Thanks for reading.

Share my own story
This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.