Skip to Accessibility Tools Skip to Content Skip to Footer

Life With Migraines

I got my first migraine at 16 years old. I awoke in the middle of a school night thinking someone had hit me in the head with something. The pain was indescribable, I paced my bedroom, yelled at my little sister when she tried to comfort me, and eventually screamed at my parents when the burst into our room trying to find out what was going on. My scared parents decided I need to go to the ER. That was almost 20 years ago. The diagnosis was specifically Cluster Migraines, very rare and very very rare in women. I would not have my next round until college and I was a little more prepared. I did have meds on hand and no roommate to disturb. Needless to say as I progressed into my twenties my sister was my biggest supporter. She knew the look, meaning I was about to start a cycle, or I was coming off one. My husband learned the hard way early in our marriage what happens during a cycle. The pacing, yelling, swearing when bothered, crying for no reason, and the messy aftermath. I was sure he would leave, but he did not.

Over the years I saw a neurologist, chiropractic specialist, started preventative meds, journals, and diet elimination. The migraines came more and more frequently. At an absolute down point I started taking Excedrine migraine on top of all of my prescribed meds and led myself in to early renal failure. Thankfully that got fixed but here I am 35 and wondering why me? Some days the pain is too much. My husband does get frustrated about my “headaches” because they render me useless. I would never wish this pain on anyone but sometimes I want to yell it’s not just a headache! I would welcome a headache!

Life with migraines is hard but not impossible. I have missed many important family events, time from work, and overall free time. However I have also learned a lot, mainly to appreciate everyday because you never know when you might have lay in bed all day with a migraine!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Nancy Harris Bonk moderator
    3 years ago

    Hi Trisha,

    Thank you for sharing your story with us. You’ve made some excellent points!

    Sounds like its time to discuss a new migraine prevention medication with the doctor. There are over 100 medications that can be used to treat migraine. Let me share that with you here; https://migraine.com/blog/migraine-management-essential-4-preventive-treatment/.

    Keep us posted on how you are feeling,
    Nancy

  • TrishaNP author
    3 years ago

    Not really. I take Sumatriptan when I get a migraine and Topamax and Celexa as preventatives but here recently they don’t seem to be working. I started with Maxalt and been through several other meds, so I am just at a loss. I really don’t like taking so much medicine but I hate the migraines worse!

  • Adriana
    3 years ago

    Fighters and survivors. “We fight through the pain and live to tell the story” My husband still thinks of nothing when he sees me suffering. He thinks of it as my way out of mommy and wife duty. After so many years of marriage he acts so ignorant and doesnt careto know the doesntof this condition. I also have seizures and he only believes me when he is rushing my ‘passed out’ self to e.r. I guess we just have to educate people a little bit more about it. And then some! Have you found a med that you think actually works?

  • Hope and a Prayer
    3 years ago

    I would imagine that having your spouse question the truth of your pain and seeing it as a way to shrug off responsibility hurts as much as the migraines, just in a different way. I hope that his eyes and heart will be opened to you soon. I haven’t found a med that works yet either but as mentioned in the blog that Nancy referred to, the list is long. I have more to try and I have hope. I also just had my first Botox treatment last week, but it will take time to learn if that works. I hope you soon find your best solution.

  • Poll