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Not Understood

So I am sitting in my living room watching my two small children play as we are on vacation from school. I start seeing from the corner of my eye some sparkly lights. Right away I said to myself, “Oh no!” It starts to get wider and bigger within a couple of minutes. Yep, it’s my Aura. So I run to my medicine cabinet, my children(4 yr old and 2 year old) scared of what was going on. I started trembling and fumbling thru my medications to find one pill. I sometimes feel like I am addicted to these that when I get my aura I fumble thru every thing I can and pray I find one.I only get approved 6 pills for one month. Its horrible to find out that you have run out. So I text family members that I am getting my aura and they tell me “well close your eyes so you won’t see it” or “you know what to do, you’ve gotten that before”. Why don’t they understand how I feel? Then being at home by myself with two little ones who are needy. So then 15 minutes later my aura is gone. This is where I stand right now…it’s like the saying “wait for it….wait for it…” because within 30 minutes of my aura ending I get hit with the biggest migraine. Migrarines with aura are the worst ones I get. I only wish the public would understand what a migraine is and that it’s not just a headache.

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Comments

  • SilverPhoenix13
    3 years ago

    I understand how you feel completely. I get auras, as well, and they are different in how they behave for me. Sometimes, I they’re lines of light dancing across my vision, other times they pinpricks of light flashing before my eyes, and still other times it’s like little fireworks going off. Once the aura goes aways, I usually get pain in both sides of my head that feels like someone is tightening a large vice.

    I’ve gotten to the point where I can force myself to function through most or all of a migraine, but I always get one or two a month that get so bad that the slightest movement of my head is excruciating and/or makes me feel like I will throw up plus causes my vision to go completely white.

    My closest family and friends are pretty understanding, except one cousin who believes I’m faking them. It’s some of my coworkers and my bosses that don’t understand.

  • Ellen.S
    3 years ago

    Hi trying to live; I have so much compassion for those of us who suffer this invisible disease. I also panic when ever the inside of my right nostril starts to itch and burn. This is a relatively newer morphed ‘predrome syndrome’ symptom in the past 10 years.
    Having aura’s is not the worst kind of migraine and they are the most treatable. Have faith. I very rarely get aura
    but I have had ocular migraines here my peripheral vison just pixilates and I can’t see to my sides of my vision.

    The medicine I used to take took 4-8 hours before I could find any relief. Now I have built up a tolerance and it does not work at all. So I have nothing at present. There a few things I have learned over 29 years of fighting these lifestyle crashers and that is; do not beat yourself up for being medication dependent, no guilt if others do not understand, work diligently around lifestyle changes to accommodate yourself.
    Just do not reach for pain meds, they did not work for me and they can cause real harm down the road.
    As always much luck and light.

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