Migraine Shame
I've been a migraine sufferer for almost two decades now, and in some ways, I'm doing better than I ever have with this disease. I get Botox every three months, go to a chiropractor once a week, have incorporated exercise into my daily routine, and have a great medication on hand at all times. But now I'm dealing with something I never really had before -- something I refer to as "migraine shame."
Dealing with shame
I now strangely feel like I'm disappointing people -- my husband, family, friends, DOCTORS -- when I get a migraine now. It's like everyone in my life thinks my chronic condition has magically disappeared, so they make a huge deal when I still experience the crippling pain of a migraine.
I wake up with a horrible migraine, and my family asks "how come?? what happened?" I go to the chiropractor, and after weeks of telling them I've been feeling good, I eventually have to let them know I've had a bad week. They ask, "Why??? Do anything different??" -- insinuating I must have done something wrong.
Hiding migraine out of guilt
What's happened now is that I'm starting to hide my migraines because of the shame. I feel guilty when I get them, I feel like I did something wrong, or like I'm letting down all the people who help me to feel better. After suffering from crippling pain on a Monday, I tell my chiropractor on Wednesday, "nope, I've been good!" when he asks, "any headaches this week?".
Anyone else experience migraine shame?
Community Poll
Do you feel comfortable advocating for yourself to your healthcare provider?
Join the conversation