Skip to Accessibility Tools Skip to Content Skip to Footer

Stepping Stone

In 1979 I was 6 yrs old. riding home on the bus from day camp I began feeling sick and head started hurting, lucky me I was able to move to an empty seat and lay down my brothers thought I was lying but the longer I was laying there the worst it got.

By the time I got home, I ran into the bathroom started throwing up and than my brother called my step mom and told her what was going on and she gave me a Valium and I slept for about a day. A few weeks later I got another one after being at the beach most of the day we went back to our condo and I slept it away again with another Valium.

Ever since then I have had migraines as I got older they became stronger and more often. My father had issues with headaches and my Mother, Grandmother and Aunt all suffered from migraines. So I learned what caused some of them I tried tons of medications ending up being allergic to 90% of them all from preventives, to just about everything on the market but surgeries.

Im 45 now and Im at 25-27 migraines a month. Ive done botox was allergic to it, worst thing in my life having to be in the hospital for it. I am no different from everyone else I just know there are so many different medications out there I have tried over 43 different types. I so want people to understand I have tried diets cutting all meat out of my diet things like adding things in slowly. Weather is a LARGE part of my issues at times any time there is anything more than a 10 Degree change in weather I’m down for the count. I cant use the ice masks or caps that are out there because my neck is sooo sensitive that if cold hits it I’m down and out with a migraine could be for weeks at a time.

My longest migraine was almost 2 yrs. I had the headache daily was about a 5 on the scale, by the time the day was over I was beyond a 10. Ive been through Cancer twice and to me that was easier with the surgeries and the medications afterwards were easier than living with this disease. This disease has cost me family, friends, and finishing my college Masters. It has taken so much from me and on top of it all I have passed it on to all 3 of my children. Talk about feeling guilty I feel like one of the worst mom’s in the world because they have to deal with them thank god that theirs are not as bad as mine are right now. I just want to know I am not alone besides my kids having them. I have the most supportive husband he married me when I was the mom of 3 on the go go go all the time and he still married me.

I have been on disability because of these things. I see so many of you suffering and I just and in ahh of how you handle it or how medication has worked for you. I saw the Top Migraine Dr’s for yrs and still couldn’t find anything. I’ve been in the hospital having test after test sleep studies and seizure studies spinal taps. I’m Done. I just want to melt away and be a stepping stone cause at this point that feels like that is all I have done in my life is be a stepping stone cause of all the different types of medications, diets, tests, and hell I still live in. My husband has gotten to the point that he is like I cant live in the bedroom like you do I tell him I never asked him to. He goes into the living room and turns the tv on and comes in and checks on me sometime’s too much.

I just began CBD Oil in a Vape, it helps for an hour or two on top of taking opiates I have tried so many of them that it’s like eating candy. My Dr is wonderful, he is my GP and he does everything listens to everything I have a notebook I take to the Dr every time I go in which is monthly or I wouldn’t have medications. I jot down things as I feel see or know questions or comments and he reads it and deals with each issue one at a time. Yes by the way I have Anxiety, Depression, Fibromyalgia and Lupus I had Uterine cancer and Colon Cancer in fact I found out this Feb 2019 I was cancer free.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • glassmind
    8 months ago

    Thank you for sharing your story. What an incredibly challenging time you have had. May you stay cancer-free and have as much relief from Miraine as possible, if even just a moment here and there.
    Hugs

  • Allyson.Ellis moderator
    8 months ago

    Virginia, thank you for sharing your story. You have certainly endured a lot with migraine in your life! I hear the burden you feel for having passed migraine to your children. You are not alone in those feelings of guilt. I thought this article might resonate with you: https://migraine.com/living-migraine/passing-on-migraine/ It is frustrating going through so many different treatment options without finding a medication that offers you meaningful relief. I’m glad you have such a loving, supportive spouse. Knowing you have someone in your corner can make such a difference. Please know you can reach out anytime you need support or a safe space to vent. We are always here to listen. Thank you for being part of the community. Wishing you a gentle day. ~Allyson (Migraine.com team)

  • Lalorien
    2 weeks ago

    Virginia, I know that it had been awhile since you shared your story, but I wanted to let you know that you are certainly not alone. Your story is so very much like my own (minus the kids as the cancer took that from me, so I funnel my energy into my job instead.) My migraine journey also started at 6 and progressively got worse. By high school I was at 4-5 a week but it is now easier to count the days per YEAR (about 20) that I am without migraine.

    I did not have the opportunity to see any specialists or even a GP about it until about ten years ago. In that time, I have tried more than 50 different medications (a couple of the rescue meds would work for a couple months, but never a preventative.)

    I must agree with you that the rounds of chemotherapy, radiation, and targeted therapy and even surgeries, were easier to deal with than this danged disease. I was able to stay in school for my masters while going through chemo and radiation the first time, but a year long migraine took my career as a teacher and the second bout with cancer, took my nursing career.

    I began that journey in 2013 with the diagnosis of uterine sarcoma and then again in 2016 but I have been free and clear since October of 2018. This is also when I got remarried and gained the biggest supporter in my life.

    It is after this that I learned to advocate for myself a bit better and am finally seeing a migraine specialist. We are currently trying Botox but it has not had much success here. (I am very thankful to not be allergic to it, but it would be nice if it would just work.) I think that the next on our list to try was going to be one of the new CGRPs if we can get it approved through my insurance.

    We will see where things go from here. I have been feeling defeated lately, but I am hoping that I can start a new career for graphic design and just work in between the worst migraine times. Hopefully they will find something to work for me soon, but until then, I will be continuing to fight for some kind of life outside migraine and I pray that you will too!

  • Poll