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Teen with hemiplegic Migraine

Mom of teen with hemiplegic migraines. I too suffer daily chronic headaches that mimic migraines. oh joy!

But my son is 16 and has had his second spell, I guess you call it with this migraine. Three years ago same thing and honestly the headache never went away. It just subsided to a pain level he could live with and still function. Symptoms: dizzyness, headache, can’t walk heel to toe, severe dizzyness when stands up, or climbs stairs, walking then he all of sudden falls. All sounds like brain stem infections and this time the headache did come after a flu 🙁

He has tried topirmate but didn’t tolerate well. Severe reaction with depression when on it. Periactin did ok but didn’t get rid of the headaches at all, and then he just lived with it.

I am not sure if anyone has any success with indocin for pain or any suggestions or stories they can share. I honestly just want him better.

My headaches have always been daily chronic and cluster when seasons change. Changes to fall/winter always sets me off but my concern is for my son.

Any feedback would be appreciated. Thanks

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  • bmckay99
    3 years ago

    hi, I’m 16 and I’ve suffered from hemiplegic migraines since I was about 14. I don’t share a lot of the same symptoms with your son (I get numbness, weakness and tingling down one side along with headaches and the first time, slurred speech. I was taken in an ambulance to the hospital as my GP thought I was having a stroke or had a brain tumor), and I am a girl, but I was given naproxen for the pain, and I found it helps if I either sit up straight or lie down completely flat for the pain, and also dim the lights. I hope he can manage them better soon, but so far for me, the only thing that has changed is the intensity of them, and only the headache can be stopped.

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