Virginia's story

I have had migraine off and on from 9 years old. In 1997 after a car accident they became chronic. I have auras, nausea, vomiting, photophobia, sound sensitivity and smell sensitivity, dizziness, idiopathic syncope, fatigue and a slew of other symptoms.

Last April my doctors told me no more working, so I applied for disability benefits. I am still waiting. I think one of the hardest things to deal with is the isolation. I live in my 'cave,' mainly in the dark. Rarely do my friends stop by or visit.  And, to be fair I don't call them as talking on the phone intensifies the pain. I miss them.

I have 24/7 migraines with no start and stop. Four years ago my neurologist told me there was nothing that they could do for me anymore. Botox was not an option due to having acinic cell carcinoma, nor would I qualify in the future. So I straightened my spine and got through day to day living. Except this is not living a quality life. I have a new Doctor, who is referring me to a migraine specialist, so that part is looking up.

I think that living with chronic migraines is the hardest work I have ever done, it's not for the faint of heart. As I am new to this forum and I'm reading your stories, I want to thank you for the insights that everyone is sharing. It is a big help.

Thank you

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