My Life with Migraines: Any words of wisdom, or advice?
Last updated: October 2020
I am so thankful I found a place to share my story, with people who know what its all like. I had my first migraine on October 19th, 2013. I was in my college town in Dayton, Ohio. My parents were visiting me for the weekend. We were at the mall, when all of a sudden, I got a horrible headache. Naturally, we had no idea what was going on, so we went to the ER. While there I got a CAT Scan and IV medicine. The IV medicine left me feeling extremely out of it.
My next migraine occurred on April 3rd, 2015, Maundy Thursday. I remember because I was supposed to help with my church offering that night. The migraine began with numbness in my face, then the pounding headache, then the phantom noise in my ears. From there, I went to the ER, and got the CAT Scan and MRI, but no medicine. After the ER visit, I saw a really nice and helpful neurologist in Philadelphia over a six-month period. During those six months, I had daily migraines where I became physically ill pretty much on a daily basis. I would throw up so much, that after every time, I felt like I didn't have a body anymore.
While having a break from those migraines, I went through a period of several months during which I vomited, but also felt so exhausted, that sometimes I could not walk. Every time I stood up, I felt as if I was going to faint. That's because I have orthostatic hypotension. So, while I was still seeing my neurologist, I also saw an endocrinologist. It was determined that I had low cortisol levels. My mom, who is a nurse in Philadelphia thought I had Addison's Disease. But, after lots of blood-work and tests, I never got any definitive answers about that issue.
Now, my migraines are back. The nausea and pain are unbearable. I know we are not allowed to give medical advice to each other. However, with that being said, has anyone ever had a migraine with no headache, and just fatigue?
How important is migraine awareness to you?
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