I’ll get the obvious out of the way. Obviously you’re not trained medical professionals, and even if you are you can’t diagnose me over the internet. I have a lot of experience in that area (knowing that an internet opinion is just an opinion not a diagnosis). I have an appointment in a few months, my sister says it’ll come fast, but when you’re in pain without a working medication it seems like ages. Even a morning with level 1 or 2 pain seems like days. I just want some ideas of what I could be.
Note: I do know that I suffer from tension headaches as well. Apparently having for than one type of headache is normal for migraine sufferers.
For my migraines I experience these symptoms:
-pain (not always on the same level and varying on the scale of 1-10)
The pain feels like a pressure. Sometimes it feels like the pressure comes from inside the skull pressing outwards, and sometimes it feels like it’s coming from outside the skull pressing inwards. Either way it feels like my skull will break
-Nausea (with vomiting, I have a few prescriptions for that so I can actually hold down food)
-auras and visual hallucinations (by hallucinations I mean I actually see people that aren’t there and so on, but I also have the general auras as well)
-sensitivity to noise and light (obviously)
-easily annoyed with noises
-high pitched noise triggers (I can go to concerts because I listen to music with a lot of bass. It’s not loud noises that bother me, but high pitched ones)
-unable to control body temperatures (I kept going from far too hot to far too cold with my last migraine. This isn’t unusual)
-scent triggers (anything of a chemical scent.Natural scents like oils and incense don’t bother me)
-irritability (I mean it might just be because it feels like someone is crunching my skull, but you know)
-inability to sleep (I thought it was from the pain before, but I recently realized the days before and after the migraine I sleep poorly)
-no other known triggers (like really, I’m sitting in my apartment specially designed for me so that nothing can trigger a migraine, and it comes on. This is a common occurrence)
-depression (maybe it’s because of the pain and knowing there’s nothing I can do to help it)
And NOTHING helps. I can’t take preventatives because side effects make me unable to function for a few days (I’m told that fades after a few days, but I can’t afford that). My abortive medication recently stopped working. I’m going to have to either ask for an increased dose or change medications which terrifies me. What if it doesn’t work?
I really need help. As mentioned, I have a few months before my doctor visit, so I need to know where to start. I’m going to my primary care soon, and I need to know what type of migraines I’m experiencing so I can do research and figure out what I can do to help. What my primary care can do to hold me off until I go to the specialist. I REALLY can’t survive with level 10 pains like the one last night for months. I couldn’t even take my vitamins (used to help my other issues like magnesium deficiency and iron deficiency caused by my diet).
I’d also like to make it clear. I eat healthy. No junk food. No crap food. Occasionally cheeze-itz caused by the hunger I get from my migraine medicine, but that’s it. I just don’t eat meats or leafy greens, so I don’t get in a couple of key nutrients from there. Other than that, it’s balanced. Plus I’ve been trying to do better (put spinach on foods where I can even if I hate it) because health is a thing that I need to care about when I have a chronic illness that makes it so I can’t hold down food.