Forums


Prevention Medications

Diamox – the new topomax?

  • By charmmy

    Hi everyone,

    I just came from the neurologist. I have chronic refractory migraine that don’t respond to pretty much anything. The only luck I have has has been with topomax, but I lost too much hair on it, so I needed to discontinue. (As a side note, when I stopped it, my hair came back in but it all came back GREY!!!)

    I go to a top headache specialist in a major NE city, and he stays very up-to-date on the relevant research. He just went to the headache conferences and came back and told me that some neuros were having success with Diamox in patients for whom topomax provided relief, but also intolerable SEs.

    Has anyone out there tried this?

    Thank you – best wishes

    Gummy

    Reply Created with Sketch. reply
  • By Lynn Voedisch

    Hi,
    My doc gives me Diamox for weather headaches. It was originally used by mountain climbers to deal with air pressure changes. It’s only minimally effective at best (I must have gotten too used to it, because air pressure/thunderstorm headaches are my worst).

    I was on Topamax for years and it took me down to NO headaches, but there were multiple problems including hair loss ( I didn’t that I it came back gray, but then I dye my hair). I just don’t see how Diamox would compare at all.

    Reply Created with Sketch. reply
  • By Nancy Harris Bonk Moderator

    Hi charmmy,

    Diamox is one of over 100 medications that can and are used for migraine prevention. It’s in a different class of medication than Topamax which is an antiseizure medication. Diamox, generic name acetazolamide, is a carbonic anhydrase inhibitor. Some people have very good luck with it.

    Let us know how you make out with it,
    Nancy

    Reply Created with Sketch. reply
    • By jns192 Moderator

      jbright,
      Thanks for your comment!
      I am sorry that you had to stop taking Topamax due to the side effects.
      I was taking this medication a few years ago and also stopped for the same reason. I felt very foggy and my legs would constantly have pins and needles. It was very uncomfortable.
      Have you and your doctor discussed other preventative options?
      I wanted to share with you our page on migraine treatments- there are hundreds of options.
      https://migraine.com/migraine-treatment/prevention-medications/

      Please feel free to keep us posted on your new treatment plan.
      We are here for you.
      Best,
      Jillian (Migraine.com Team)

      Reply Created with Sketch. reply
  • By Lynn Voedisch

    There is no “tip.” Diamox just the same drug as Topamax only more fast acting. It doesn’t solve any of the many problems associated with Topamax. I was on both versions and actually developed kidney damage (reversable) from this drug. There are many alternative drugs that aren’t as potentially damaging.

    Reply Created with Sketch. reply
    • By jns192 Moderator

      Lynn,
      Thank you for sharing your experience with us. I am sorry to hear about your kidney damage but glad it is reversible.
      Have you and your doctor found another treatment that works for you?
      Best,
      Jillian (Migraine.com Team)

      Reply Created with Sketch. reply
    • By 1bi480g

      What do you mean by saying it is the same drug? I know that Topamax and Trokendi are the same drug, just encapsulated differently to release at different rates. Is Diamox the same drug (topiramate) as well?

      Reply Created with Sketch. reply
    • By 1bi480g

      I’m glad to hear that!!! Congratulations! Did it just take time for your kidneys to heal with special diet? I don’t know too much about kidney healing.

      Reply Created with Sketch. reply
  • By charmmy

    Hello – I’m back again.

    Diamox and topamax are not the same medication, though both are carbonic anhydrase inhibitors. Diamox is a very weak diuretic.

    The Diamox worked like a dream for quite a while and then I was requiring higher and higher doses until I was 3 grams daily. The positive effect just stopped then, and I haven’t been able to get relief since.

    I do think Diamox has potential – particularly for those for whom Topamax has been effective but caused prohibitive side effects.

    Good luck!

    Reply Created with Sketch. reply
  • By DebT

    Lynn – Tell me more about the cefaly, I have debated getting it. my headache nuero doesn’t have to try out. I think they should. thanks deb

    Reply Created with Sketch. reply
  • By Lynn Voedisch

    I now use the CEFALY II, for which you don’t need the headpiece. Just Visit http://www.cefaly.com/us and they have a full explanation of how it works plus a little movie. I have had pretty good success with it. At first it got rid of my migraines entirely, then went down to eliminating 80% of them. The step up to Cefaly II meant it could turn the stimulation up to maximum immediately, which helped me greatly–but some people can’t stand the sensation. You have option of going up slowly. They give you about a 4-week trial period and if you can’t handle it you ship it back and get a full refund.

    Reply Created with Sketch. reply
  • By Lynn Voedisch

    By the way, my migraine doctor did try it and can’t stand the feel of the stimulated nerve.But he thinks it’s cool that I have no problem with that,

    Reply Created with Sketch. reply
  • By DebT

    Lynn – one more question. Where are your headaches?….mine are top to right side, they start up the side to back of neck along with neck stiffness and sore neck trigger points. Being this device is used in the front, wasn’t sure I would have luck with it. thanks

    Reply Created with Sketch. reply
  • By Lynn Voedisch

    While I do get secondary neck pain, mine are primarily right under my left eyebrow, where the sinus is. (Which explains why I was misdiagnosed as having chronic sinusitis for a long time. I do fee pain right along that trigemic nerve (if that’s how you spell it) that the Cefaly works on. Kinda sounds like you may not respond to the Cefaly,but all migraines are supposed to be triggered by that nerve. It certainly couldn’t hurt to give the Cefaly a four-week trial–you wouldn’t lose any money and might find relief.

    Reply Created with Sketch. reply