I just came from the neurologist. I have chronic refractory migraine that don’t respond to pretty much anything. The only luck I have has has been with topomax, but I lost too much hair on it, so I needed to discontinue. (As a side note, when I stopped it, my hair came back in but it all came back GREY!!!)
I go to a top headache specialist in a major NE city, and he stays very up-to-date on the relevant research. He just went to the headache conferences and came back and told me that some neuros were having success with Diamox in patients for whom topomax provided relief, but also intolerable SEs.
Has anyone out there tried this?
Thank you – best wishes