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Symptoms

I wish it would stop…..

  • By Dizzyagain

    Over 50 Newbie here…I have been having this daily headache for about 6 months. It started right after I had this weird cigarette smoke smell (phantosmia) that wouldn’t go away. My headache starts every morning around 8 or 9. They are mainly around my left temple.It comes and goes throughout the day. Along with blurred vision and upset stomach. Have had a CT scan and a MRI. My ENT said I don’t have a sinus infection. The results of my MRI were “Suggested congenital hypoplastic A1 segment of the right anterior cerebral artery. Mild mucosal thickening scattered bilateral ethmoid air cells and frontal sinuses.” Waiting to get a follow up appointment with my ENT this week.
    I do wish the headache would go away. I don’t like to feel this way everyday!

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  • By Nancy Harris Bonk Moderator

    Hi Dizzyagain,

    Thank you for sharing your journey with us, although I’m sorry to hear you are feeling well.

    Have you seen a neurologist? That may be a good step in treating this head pain. Getting an accurate diagnosis will help you learn about your disorder and find the correct treatment.

    If the ENT is suggesting surgery will “cure” your head pain, I would get a second opinion. Surgery is rarely the answer.

    Looking forward to hearing more from you,
    Nancy

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  • By Dizzyagain

    Thank you. My ENT wants me to see a Neurologist asap but the first Neurologist couldn’t get me in for at least a month. Waiting to hear from another. Hopefully I will today. Nobody is suggesting surgery.

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  • By Dizzyagain

    Went to my Neurologist yesterday. He said it looks like Hemicrania continua. Waiting to try Indomethacin to see if it works. I sure hope so…getting tired of the daily headaches. Also have lots of blood work scheduled for today.

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  • By Dizzyagain

    I’ve been on Indomethacin for about 2 weeks. It’s not working. Having to take Tylenol everyday. Waiting to hear back from my Neurologist. This headache thing is getting really old

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  • By Dizzyagain

    Calling my neurologist today. He has had me on 75mg ER Indomethacin plus 25mg 3 times a day and I still have the headache. I am going to ask him if it could be Giant Cell Arteritis. I am concerned because I do have a Thoracic aortic aneurysm (4.7cm).

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    • By Nancy Harris Bonk Moderator

      Hi dizzyagain,

      I hope you are feeling better. Hemicrania continua is usually responsive to indomethacine. You’re right – it may be something else.

      I hope your appointment with the neurologist went well.

      Let me know how you made out.

      Nancy

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