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Diagnosis of Migraine & Headache Types

Idiopathic intracranial hypertension or vestibular migraines migraines

  • By kel2278

    Anan ENT said that I had symptoms of idiopathic inter-cranial hypertension I was having severe dizziness and vertigo with drop attacks and I was very in balanced my head would pound when I would bend over but I had no visual disturbances. And dizziness seem to be induced when I would turn my head that would take over and turn into very severe vertigo that would last anywhere from 10 minutes to 12 hours it’ll happen during pregnancy and only got worse as I got postpartum it lasted for about 3 months until they got me on Topamax 200 mg. My neurologist believes that they are just vestibular migraines. But they have never done on lumbar puncture to see what my pressures are. I don’t have the classic pounding headache it’s more of a dull pressure that I have come to realize postpartum I have at least three to five times a week sometimes more sometimes less that he has said are tension headaches. My question is has anybody else had any problems with this during pregnancy and deathly scared because this was just my first to have another baby and go through the same problems because doctors can’t really answer that question. I really wanted a big family but this kind of puts a wrench in my plans. What are others experiences with both idiopathic intracranial hypertension and vestibular migraines? I’m scared to get off the Topamax and have the vestibular migraines reappear if that’s all it is what Topamax causes birth defects in babies I just need somebody else’s wisdom and experience because I never had to deal with any of this until after I had my first child and pregnancy.

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  • By Nancy Harris Bonk Moderator

    Hi kel2778,

    Thank you for sharing your story with us. I have IIH and occasionally had vestibular issues, but neither were issues when I was pregnant. I’m sure others will be along shortly to share their experiences with you.

    In the meantime, I would encourage you to speak with your doctor about having a lumbar puncture to diagnose IIH. Dizziness/vertigo/balance problems can accompany IIH – it would be possible to have both IIH and vestibular migraine, but it would be good to rule them in or out, then you can get the correct treatments.

    Here is our information on both; https://migraine.com/?s=vestibular+&submit=Go and https://migraine.com/?s=IIH&submit=Go.

    I hope this helps!
    Nancy

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