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Surgical Options

Neurostimulation

  • By Emily Joy

    I have plans to have neurostimulation here within the next month for my chronic cluster headaches. Would love any feedback from cluster headache sufferers who have tried neurostimulation, whether it helped them or not. I have tried everything else. Thanks in advance!

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  • By Ellen Schnakenberg

    Hi Emily Joy,

    This is a Migraine site, and as such, there are a few cluster headache patients here, but they may be a bit tough to find. It may take a while to get an answer to your question.

    What might be helpful for, is to know exactly which type of neurostimulation you’re getting. There are several types, and a brand new one especially for cluster headache that is ready to be approved at any moment now. It is even wireless!

    ~Ellen

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  • By Emily Joy

    Thank you, Ellen! I didn’t realize there were different kinds of neurostimulation. What is the upcoming treatment called for cluster headaches? I believe the one I am supposed to have is wireless.

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  • By Lynsi

    Emily,
    Did you ever have this procedure? My doctor and I were discussing doing this for me as well. I have new daily persistent headaches and have had the migraine since February 2013. I have not had a single day of any type of relief. Lately, they have just become worse and it doesn’t seem like any medication or Botox will work on me. So, this may be the last option. It is pretty invasive though and I would love some feedback! Thank you so much!

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  • By Crystal – age 41

    I have chronic migraine for over 5 years, and am considering the Reed procedure since the drug approach does not give me the relief if need to care for my family and have a real life. I see a number of different things about the insurance payment – sometimes paying for the procedure, and other times not. I need to know: 1) Did your insurance pay for this procedure 2) How much did it cost 3) Did it work. Can you PLEASE help, as I really want to find a solution. I sincerely appreciate any help you can offer. My biggest fear is that the insurance says they will pay, and then they do not. I live in Texas. Thank you again – I really appreciate your help.

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  • By MsPiggyknows

    Crystal-Age 41. Hi Crystal! My name is Lisa. I had the Omega Procecure at the Migraine treatment centers of America in Dallas in May of 2015. Before then I averaged 5 migraines a week. Since having the procedure I have had 6 migraines-only 2 were severe, but not so bad I had to go to the ER for a shot. I have a part-time job. I havent been able to work in 17 years. Our insurance paid for everything but the anesthesia used during the trial. You do a 4 to 6 day trial before ever having the surgery. That way you know before you have the implant if it will work or not. It does NOT WORK FOR EVERYONE LIKE IT HAS FOR ME, BUT YOU WON’T KNOW IF YOU DON’T GIVE IT A TRY! What do you have to lose, but pain?

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